I have been trying to acess this article:

Clinical Case Report: Reflex Sympathetic Dystrophy: A Case of Total Body Pain

Any ideas would be helpful thanks.

Hugz,
Sandra

Is this it?
http://www.nursingcenter.com/library...icle_ID=737336

[Chen, Yan NP; Kelly, John MD

Yan Chen is a Nurse Practitioner at The Washington Home and Hospice, Washington, DC. Dr. John Kelly is a Neurologist and Chairman at the Department of Neurology at George Washington University Medical Center, Washington, DC.

Reflex sympathetic dystrophy (RSD), also known as complex regional pain syndrome type I (CRPS I), is a chronic condition characterized by burning and aching pain; hyperesthesia and allesthesia; motor disturbance and soft tissue change; vasomotor and autonomic changes; and psychosocial disturbance. 1 Early signs and symptoms of the disease usually include inflammatory signs in the affected limb and muscular paresis with easy fatigue. 2

RSD can be difficult to diagnose and often requires excluding other conditions that produce similar symptoms. A thorough history and neurological examination is important for accurate identification. During the examination, the practitioner may notice that response to ...
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yep.. havent got a credit card I was hoping someone already had it or acess to the whole article.. a link through... hmm pub med perhaps..

thanks Jo

Pub Med shows this as their only source of the article:

1: Nurse Pract. 2007 Sep;32(9):8-10

That is the same source as your link Jo.

This article is new out as of this month and is a case study of a person with full body RSD, it's things like this and the articles on spread that can help with my battle with W CB and for understanding..

Thanks,
Sandra

Here is the article.

Attached Files

RSD Total Body Pain.pdf (67.0 KB, 540 views)

omg. her treatment caused that spread.. her symptoms are mine omg

That is a very interesting article. Can't spell tonight. Took me awhile to figure out how to spell article and still not sure it's right.

She had a lot of the medical problems that I have delt with also Sandel.

What I don't get though is why they are saying that full bodied RSD is unique. How many people on here are full bodied?

I'm glad that they come out with these articles, they do help us to learn from what others are going through and how they live with it.

Do you think that it is unique that she was full bodied or should I say the statistics they are saying of full bodied is right about being rare?


Ada

Yes I believe organ involvement and full body is a fair lot more prevelant than the medical comunity realises, and I think that organ involvement is alot more prevelant than WE realise.. that woman's intestinal blockage that turned out to not be was probibly a flare up.

I think Ada that they usualy diagnosed us as having other problems alot when infact it is the RSD like carple tunnel syndrome and gallbladder attacks for instance., I can't think.. man that article hit me hard.. I have to remember that we are all diffrent and just because her spread and symptoms so sound like me dosn't mean I will get that bad.

I need sleep.. nite all thanks ada

please remember that she had 20 years of various problems before the RSD started to spread, too ... and RSD is SO unpredictable in every individual that there is really no template for predicting how the disease will progress. That is why the "Phases" model has largely been abandoned...
I did think the article was useful because it is gets out in the open that RSD can spread beyond only one "region" of the body, and also that it can involve multiple "systems" of the body (like gastrointestinal), not just neurologic. So many doctors just don't "get this" and it's so frustrating for people with advancing/ advanced RSD.

Thanks Mollymcm I am usualy the first to say that too, I guess it was that I had never heard my spread and symptoms discribed so acuratly before, I always told the docs that it spread that fast and they always claimed it was fibro on top of RSD.. till lately when I was diagnosed in June with full body generalized CRPS and have searched since for some article that described my symptoms for WCB and for me .. a part of me always hoped it was mabie something else.

But now I can move on as we all have to grieve mourn then deal with it, I guess I hadn't when I thought I had, and I will not end up as bad as that woman I have not had all the invasive surgerys and won't ever without precautions.

Thank you for getting that article I guess I needed it more than I knew and it will help emensly for others with this too and with WCB and insurances to go along with those Dr's notes.

hugs,
Sandra

I spoke of diffrent syndromes making up the RSD/CRPS syndrome, I know that she has my syndrome.