Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-17-2007, 06:20 PM #21
HopeLivesHere HopeLivesHere is offline
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That is great Tayla. I don't understand why it should take a year.

It only took 2 months for me.

This must be because our doctors are not afraid to raise our doses until we get the relief we should have, or change the med over to one that is stronger.
I belong to a forum where people are still in pain because their docs won't give them what they need. That is an important question to ask before ever getting a pump. Will they give increases until you reach good pain mgmt.
Well, why in the world would they put the pump in us if they won't give
us the dose we need for pain relief ??? But from what I read on that forum, sadly they do. I'd be kicking and screaming if I went through that surgery and I couldn't get relief because the doc is afraid to raise my dose or change to a stronger med.
It is good news that both of us got relief so quickly.
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Old 10-17-2007, 07:36 PM #22
tayla4me tayla4me is offline
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Quote:
Originally Posted by HopeLivesHere View Post
That is great Tayla. I don't understand why it should take a year.

It only took 2 months for me.

This must be because our doctors are not afraid to raise our doses until we get the relief we should have, or change the med over to one that is stronger.
I belong to a forum where people are still in pain because their docs won't give them what they need. That is an important question to ask before ever getting a pump. Will they give increases until you reach good pain mgmt.
Well, why in the world would they put the pump in us if they won't give
us the dose we need for pain relief ??? But from what I read on that forum, sadly they do. I'd be kicking and screaming if I went through that surgery and I couldn't get relief because the doc is afraid to raise my dose or change to a stronger med.
It is good news that both of us got relief so quickly.



So true HLH,

These doctors should not be putting pumps in if they do not have the courage of their convictions and give adequate pain relief.
The stupid thing is that most patients who have intrathecal pumps are NO strangers to narcotics and the dose they require via the pump is often far lower than what they took before
I wish that everyone would get real about narcotics and chronic pain--we do not become addicted and becoming narcotised is rare---stupid, stupid people

Cheers Tayla
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Old 10-18-2007, 12:26 AM #23
wakegirl wakegirl is offline
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wakegirl wakegirl is offline
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has anyone encountered a doctor who implanted a pump then refused to do follow up maitnance. the only reason i ask is because i have met a few docs from areas across the country who have had to deal with patients who have been dumped by other docs after implantation. it seems to be most prevelant in texas recently. apparently medicare in texas has changed their policy and they no longer cover the refills (or med changes). there seems to be some serious concern among docs (thats never good ). just wondering if anyone has encountered follow up problems.
my first scs doc dumped my insurance not long after my implant and informed me i would have to pay $250 for office visits and pay out of pocket for any problems that required surgical intervention. needless to say i was exstatic when my pmd said she had found a better doc who was willing to take my insurance...a really good thing considering my second scs cost about $100,000+
just a heads up
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rsd following a botched epideral for knee surgery 1993
remission from 99-2003 shoulder dislocation 2003
CRPS Type 2 scs (cervicle 2005) (lumbar 2007)
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