Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-22-2007, 03:38 PM #1
nikmcjo nikmcjo is offline
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Join Date: Jan 2007
Posts: 116
15 yr Member
nikmcjo nikmcjo is offline
Member
 
Join Date: Jan 2007
Posts: 116
15 yr Member
Default hi

hey. i know it has been awhile.

but i have some good news

i went to dr today. we went to see our family dr/pediatrician/or whatever he is called. the other drs i've seen said they have done all they could do. we were kinda at a standstill (hand still contracted and immoble (going on like 3 months), blood pressure lower thank goodness but still high, big fatigue, etc) well, anyways, we went and he was VERY understanding. he spent like an hour w/ us. he said he had connections w/ an excellent rheumatologist who is hard to see. she comes into town like 2 times/month. he doesnt want to send me to drive too far too many times so he is gonna tell her about me and then i can see her when she comes into town. but in the meantime, he is gonna study ALL of my paperwork and see if he cant connect any dots. he said he is determined to help me. he said he will have a medical team work for me trying to find out anything and what to do to help if thats what it takes. i cried from joy of finally going to a dr who listens and understands me and truly wants to help. he believed everything i said and wasnt like "well, its all in your head, come back if it worsens, etc."

when i see the rheumo dr, he mentioned going to a hospital like 3 hours away frm us and staying there a week or so. it will be easier and less painful where instead of me going to a million different drs, they will all come to me and run whatever tests they need to run.

today was a really good day for me

nikki
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