Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-24-2007, 12:55 PM #11
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Heart

Thanks you guys.. It was just such a shock to read.. I knew he thought I was "hysterical" at one point durring the procedure.. he says I tollerated it well, that is not so.. I felt that catheter go up my arm like my veins had feelings my skin does.. then he couldnt get it in the heart muscle so he was going to go in again through the upper leg artery and I said NO WAY and after another try they got it to the heart through the arm.

After the procedure he couldnt figure out why I wasnt so apreciative of the fact he found no heart blockages (I am) because I could not stop crying.. I heard a few nurses discussing someone being hysterical durring the procedure.. and I was so ashamed at that time.. but I couldnt stop crying I hurt so bad and they gave me 2 regular motrin to help and because I was staying at the heart house and not my home for that night they gave me 4 more to last me till the trip home. my arm didnt shut up for along time after the procedure and is still bad at times.

My arm is second only to my origional RSD site in pain along with my heart still, I have full body RSD and did at that time too though it wasnt diagnosed as full body then.. that arm flares up alot still and I no longer have the use of my radial artery.. so no pulse on that side of my arm and half the blood flow I guess.. it's my right arm of cource and I am right handed.

This procedure happened last December though I only got a copy yesterday to read but I still have nightmares about it... it was like I was being violated at the time.. I was trapped in my own body being tortured.. that is how I felt at the time.. I posted about it then but felt like a wuss for whining.. I guess what he said and thought has stayed with me.. doctors like that dammage more than our bodys they damage our psychie and our feelings of self worth.

Thanks again it helps to know that others say this was wrong too I am just not sure what to do about this now.. I had gotten it and other reports to see what I could use for my WCB apeal but I don't think I should use that.. I wonder if they have a copy of that... they may not because they are only taking responsibility for the leg so my doc dint send stuff about my heart at that time... hmm

{warm hugz all}
Sandra
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Old 10-24-2007, 11:04 PM #12
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edited to add this was written after reading the first post. __________________________________________________ __

ROFL

I came to after one of these procedures that required sodium pentathol screaming in agony. They asked if it was the incision that hurt but of course it was actually my RSD hand. It required four units of morphine just to shut me up but I was still in agony. I was quickly admitted. It was horrid. I was caught between being awake and asleep and the pain was incredible.

They had offered me an epidural beforehand but no one had ever told me what was what.

Always take the epidural. Don't do it otherwise.
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Old 10-25-2007, 12:12 AM #13
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aagggrrrhhh - you poor thing, what a ninny that Dr{???}was.

we had a thread on the TOS forum about how we should think about making up a list of our diagnoses & meds and all treating drs names & numbers
to carry with us - in case of emergency or even to show as proof to the idiots like you had to endure.

Was this test something to do with your wcb claim?
If not I don't think you need to show it to them at all.
After my w/c claim was done I emailed lots of TOS info links to my dr & my atty - since they didn't seem to know much about it- the old wastebasket dx thing {per atty}
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Old 10-25-2007, 02:59 AM #14
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This infuriates me to no end! This post brought me back to the day I was cussed out by the cardiologist for telling him I thought there was something wrong with the leg he went in for my angiography. Only 2 hours later I was in emergency surgery to save the leg. RSD was the result of that oops.

They think they are god like cause they can tear into us and put us back together.

I would follow Tayla's advice and send this sorry excuse for a doctor some information. Dont think for a minute he wasnt hip to the fact that what he wrote would follow you around. His duty was to report on his findings, not play shrink. I believe he was totally out of line putting anything down about medications, addictions, or state of mind.

Like you I was totally clear of any coronary problems, and I am sooo glad you at least dont have to worry about that killer disease.

I would have someone else check your artery to make sure there isnt some dangerous blockage from that procedure. Sometimes it is hard to get a doctor to even look at something like that when they find out WHO did the procedure. At first they will be very helpful, then all of a sudden they wont see you anymore, or tell you nothing is wrong. Keep at them, it can cause lots more problems if there is a blockage.

BIG HUGS
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Old 10-25-2007, 08:31 AM #15
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Sandra,
So true what Allen said about this doctor, his role was that of cardiologist and not psychiatrist.
He chose to specialise in hearts----perhaps he should look for his
own
Go get him Sandra!
Love Tayla
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Old 10-25-2007, 05:01 PM #16
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while i am not a heart patient i have a family friend who is one and he had a patient with addiction issues who refused pain meds, they finally decided to do a local for an epideral. the problem is just like with most invasive procedures causing pain is not an acceptable trade off.
your doc may have been the head of the department but the reality is those positions are as much a popularity contest as anything. i would report him to the state board for several reasons...1st his actions during your procedure ignoring a preexisting condition simply to make the procedure easier for him is unnacceptable...2nd if he is unaware of an accepted dx across the field of medicine he is incompetent...3rd the fact that he caused such serious damage (a lack of a radial plus is a significant problem)...and 4th to show such arrogance to actually write that he didnt belive the dx and further to state that he believed you had mental issues is slander.
i am so sorry you had to go through that experience and continue to struggle from the damage caused. i didnt realize that medical degrees were available in cracker jack boxes...how wrong i was.
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Old 10-25-2007, 05:59 PM #17
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Hi folks,
I'd like to back up all the good things said so far - saves me an awful lot of thinking & writing and I don't know the laws in your country - come to think of it I don't know the ones in Australia.....I do know the docs close ranks.

I would like to add tho that definitively some cardiac patients subject to any procedures sometimes thoracically ranging from the simple to the comlex can end up with CRPS so that in itself is additionally troublesome given the power of his position.....and the power of his position. (Please guys correct if you think I'm wrong).

This would imply that he would stomp on anyone under him who put this forward at faculty management meetings??????

You guys are right on the money as a collective & that is our strength.

Sandra YOU aren't the crazy one.

The last vestage is your head - you have a good one....don't let an idiot like this one in.

I am so glad you are OK. This "mental" or "in the mind" question does "us" ALL a lot of harm - whether we hear one of our own has worn it or experience it first hand (I have also had this said in writing) and was none too happy......I know I'm not alone.....but we need to share these experiences where we know we will get this wonderful level of support.

It is a shame the .22 possum humane remedy can't be employed but it is possible that he can help heart patients so long as they don't get CRPS + LOL

Hugs & a gentle & peaceful day without the "P" word.
Auberon
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