Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-14-2007, 10:23 AM #1
screwballpookie screwballpookie is offline
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Join Date: Jul 2007
Posts: 207
15 yr Member
screwballpookie screwballpookie is offline
Member
 
Join Date: Jul 2007
Posts: 207
15 yr Member
Unhappy Drs. response

Hey guys,

Just thought I would give you a little update on what happen at the docs office on Monday. He doesn't have a specific reason why my shoulder is acting up, but he said it could be a start of muscle atrophy. Is this what muscle atrophy starts out like? I don't know. I also told him about me not being able to feel much of anything in my hand and a portion of my arm and he said that is normal for some rsd patients. The funny thing is that when I try to hold something or feel something I don't hardly feel it, but I still have a lot of pain. Is that something normal? It just sounds strange to me is all. The doc looked at my hands and said at least the scabs look better, until I pulled my sleeve up a little and showed him the two on my hand. He jokingly says what am I going to have to do with you put gloves on you. He says i need to stay away from what is causing that. I said then i would have to stay away from my mom because she is the cause most of the time.He just kind of laughs. He put me on the generic form of riboflavin to see if that will help with my shoulder and told me to turn my scs up if I can tolerate it. he did say that it is normal for people like me to go through things like this with as much nerve damage as I have. The new meds he put me on is 750mgs twice per day. I guess I knew that some of this stuff could happen, but I didn't think it could happen to me. I guess even though you think you are prepared for anything since I have done my research you are never ready. When I left I cried because it was still a shock to my system especially finding out that once you lose feeling it will never come back and that I might have muscle atrophy started in my dominant arm. My husband just said we knew this could happen and that was that. He didn't seem to care that it is still a shock. His mom was wonderful she understood what I was saying. Why does it seem to be such a shock to you even when you think you are prepared for it. It is just not fair. I also think to myself if I start to lose use in my dominant hand will it happen to my right hand since it has started in that one too. Am I waisting my time at going to school now? What happens if I finish school and can't do the job that I had gone to school for? Sorry I am still kind of emotional over all of this. Well hope you are are doing better than me. You all take care and hope to talk to you soon.

Tracy
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