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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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11-11-2007, 10:00 AM
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Hi everyone, I've missed you... but things here have been tough lately. My aids has been giving me a hard time recently. I have no choice now but to start meds, regardless of how much worse the side effects make my rsd. I have put this off longer than I should have. I have now developed what they call "wasting", where the body consumes muscle as well as fat reserves. It's not that I have run out of fat reserves completely, it's something that can happen regardless of your weight. The only thing that helps with wasting is the use of human growth hormones, a med called Serostim. I will have to inject myself daily, yuck. There are many serious side effects to this medicine. The major one is that over 1/3 of people who use it have musculoskeletal pain as well as all sorts of things like arthralgia, myalgia, and peripheral neuropathy. There are also edema and "tissue turgor", which is another type of swelling of the wrists and ankles. A "double-whammy", so to say. It will increase the number of and severity of my migraines, too. Not to mention that it can cause the development of Diabetes. I have tested "borderline" for years, I am worried that this will send me over that line. Needless to say, I am scared stiff. I don't want to take ANY these meds, let alone all of them!! Keep your fingers crossed, pray for me, whatever you can. I think I'm going to need it.   Rogue
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There are only two types of people in this world... those who bring you peace and those who don't. |
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11-11-2007, 11:00 AM
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Magnate
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Hi,
I am so sorry about your Aids. If your doctor says that you need medications take them. They may cause side effects but it is better to try and get your Aids under control. I am sorry that you are going to have to inject yourself daily, that is awful ((hugs)) Try to keep calm, I know that it will be hard but eorking yourself up into a state does not help you and your illnesses. Let us know what you decide to do You are in my thoughts Take care Love Alison _x_
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To the World you may be one person, but to one person, you may be the World. |
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11-11-2007, 11:58 AM
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Magnate
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Ali is right. The more stressed you get the worse it will make you feel and escalate your symptoms.
I am so sorry that you are going through this. If these meds will help you start feeling better and make you get stronger then don't look at is as a negative thing but as a positive thing. I hope you start feeling better and I am glad to see you back. Ada |
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11-11-2007, 01:50 PM
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Hi Rogue,
I wish I could do more than offer prayers and an ear if you feel like talking more about it. I can't, but you do have my prayers, and the offer stands...Vic
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The great end of life is not knowldege but action. T. H. Huxley When in doubt, ask: What would Jimmy Buffett do? email: : . |
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11-11-2007, 02:20 PM
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Hi Rogue..
I had been wondering where you were, hopeing you were away cause you were feeling better not worse, I am so sory things are escalating for you to this point ((hugs)) bud, big soft ones.. we are here for you. Sandra |
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11-11-2007, 03:36 PM
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Hi Rogue,
I am so sorry to hear about all the problems, but everybody is right you need to try and stay relaxed as possible. The docs know what they are doing. I am praying for you. I hope for the best possible outcome for you. Remember the key word is RELAX. Take care. Tracy |
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need some encouragement, I guess
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