[Sandel]

http://news.bbc.co.uk/1/hi/health/3383965.stm

[ali12]

Thanks for posting this it is very interesting.
I have seen it before and the story sounds like mine
Take care
Love Alison

[Sandel]

Hi Ali..
I apreciate your responces to my posts, the aim is to be as informed as possible and to know what the doctors are talking about, in alot of cases we know more than the doctors because of researching it well. This is a good thing because alot of our doctors know very little about RSD.

be well Alison..
hugz,
Sandra

[ali12]

Hi there - Ali's mum here
The girl in the story also appears in a video posted here earlier
http://neurotalk.psychcentral.com/sh...ht=child+video
Just to say that Zoe was initially treated by my daughters Consultant though our hospital is not mentioned in the article posted here.
I would be interested to know if Zoe stayed with Sheffield Childrens Hospital or moved elsewhere as when I asked our Consultant about HBOT he said we were better keeping our money in the bank, so possibly he lost track of Zoe or she moved on elsewhere
If anyone knows where Zoe eventually sought treatment I'd be pleased to hear about it, or alternatively if anyone could put us in touch with her it may be helpful for us to understand her thoughts on the treatment regimes offered in the UK
Thanks
Andrea