NeuroTalk Support Groups - Does anyone here have RSD in their face?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Does anyone here have RSD in their face? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/32486-rsd.html)

Quote:

Originally Posted by Tiril (Post 169462)

:( It is possible CRPS is spreading, I've had this to half my head once, but after taking Prednisolon for three weeks, it got better somehow?

Later I thought it spread to my legs, (My crps is in upper body, both sides) but after a neurologist visit, she was sure this was another neuropathy, still painfull , but it is called small fiber neuropathy, in my lower parts:confused:

So we all think this is spread, when something new happens , but it is important to allways check it out with a Dr. it could be something else, and hopefully something they can repair for once!

:hug:

How much prednisone did you take for three weeks? Was it tapered down?

I've had rsd in my jaw and gums and roots of my teeth. My ears and scalp get sores all the time and my lips swell up in the morning. I get burning on and off and pins and needles in my cheeks and lips. Its really weird. And now I have this darn ringing in my right ear. OMG. It's driving me CRAZY! I get bad headaches sometimes too. I've tried cutting back on my Advil so I struggle a little more with that, but the Advil has upset my stomach so much, I had no choice. I hope your rsd leaves your face alone soon. I will pray for you.