Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-06-2007, 03:40 PM #1
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Default Have a question about pain in another way.

As you know my RSD is mostly in remission except for the pelvic area. Not getting anywhere there.

I woke one night last week with this pain in my RSD right arm that felt like a needle was being stuck into it. It went away pretty fast but happened a few more times. The last time it stayed for quite awhile, in one area of my arm and about the size of a quarter size around it.

Night before last I woke up with the pain going across my right wrist on the inside and I had to put a lidocaine patch on and take extra meds to try and calm this down.

As I told my PCP yesterday, it sure gives new meaning to the name Complex REGIONAL Pain Syndrome.

I am also having the burning in my heels still. Cannot calm it down for very long and then it goes into my legs at night. When I get up to go to the bathroom, which is way too often, I have trouble walking. The bottom of my whole feet burn then and it goes up my legs.

Are any of you dealing with these issues? What is your thought on it?

Thanks so much.

Ada
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Old 12-06-2007, 06:00 PM #2
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Hello Ada,

Did you have your feet checked by a podiatrist for plantar fasciitis?
Just asking as those symptoms sound really similar to what I used to have when I had PF.
Another thing I would do is have your serum calcium levels checked as they can often lead to those strange symptoms like what you are experiencing in your arm.
I hope this doesn't affect your Christmas Ada.
Take care
Tayla
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Old 12-06-2007, 06:02 PM #3
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I have all kinds of oddball symtoms. I rarely even mention most of them to the doctors since their eyes glaze over when I do. Most are much more an annoyance or a distraction than a threat. One that has been bugging me a lot is that at about 11:30 PM on most nights I get an itching on my upper back that requires a bread knife to subdue. I've had patchy pain and needle like pain that dances around on my arm. I suppose I might be lucky since even though the pain can become quite severe it is not normally my biggest concern.
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Old 12-06-2007, 07:44 PM #4
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Default Hi Tayla,

I did talk to my Dr. about the PF you are talking about and you are right. This is what I am dealing with. Does it cause pain to go up your legs and electrical shocks? It is getting worse instead of better.

He showed me exercises to do and how to keep my feet from being pulled down straight by the covers. I am doing the exercises and they don't keep it calmed down.

I also got those New Balance Shoes and put a Scholls arch supports and put in them. I also got a pair of Curves Sandels which seem to help a little more then the tennis shoes.

As far as seeing a Podatrist, I have one and it's another Dr. on my list to see. With the Holidays I want to wait until after them.

Do you have any ideals on what might calm it down?

I do know I am on them too much but I cannot sat still and then by night I can't walk.

Imahotep, I know exactly what you mean. I saw my PCP Wed. and I started out by talking about wanting to switch off of the Methadone. He laughs at me, when I mention that. We have tried every med under the sun and I just cannot handle them and end up worse off then before. Then I talk to him about the RSD in my arms, then I tell him about my feet, then my pelvic area then we talked about issues of my brother being sick. Then he says ok, which do you want to deal with tonight. I spent an hour with him and still didnot get to my feet and legs. He will give me most any meds I want but he knows I've tried them all, he knows I'm messed up mostly today with my arms and hands due to being on them and falling so much. He will do research and has even gone to Seminars just to learn how to help me but other then send me out to all of my specialist he does his best and to I think he's one of the best.

My eye is better, it started up again yesterday along with the left one but I kept putting the drops in and finally got it calmed down. He says it's a virus and it has to run it's course. He was right though, the drops did work.

I do know what you mean about not being the main concern though. My pelvic pain and right arm are my main problems and these things are just the icing on the cake. I do worry though about getting to where I can't walk at all due to these feet and leg problems.

I have a backscratcher if you want it. LOL I will gladly give it to you.

Thanks for the info. and all of the great help and support girls.

Ada
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