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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   CRPS-throughout entire body, Allodynia, underlining Arthritis!! 17 yr old, HELP!! :( (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/33611-crps-throughout-entire-body-allodynia-underlining-arthritis-17-yr-help.html)

tmullen 10-17-2009 05:11 PM

hello kes, i am only sixteen years old and have had rsd from my legs up my back for six years. i am currently walking with a cane and using a wheelchair for long distances. i recommend you find the best PM doctor in your error, have you tried spinal blocks. i would do PT, and start a desensitization program. i am on amitriptalyne 50mg. it helps me relax at night. nice to meet you

good luck
taylor

AintSoBad 10-18-2009 02:37 PM

Kes,

I've had this for a long time, and have learned, it becomes more difficult to try to choose your meds and they're timing.
PRN doesn't work well for rsd.

I've found I must take the meds wether I feel they need them or not.
I'm just like you, I resisted meds for a long time.
It took years 'literally', of my docs coming down on me, with you will take it as prescribed, and NOT as you feel you need them!
(Because, then, it's too late!).

Ask your doctor about this....

my heart goes to you.
You're too young for this!

I'm here for you anytime, just pm me.

Pete
asb

Sandel 10-18-2009 10:08 PM

Hi folks, don't forget to look at the origional post dates :)

:hug:
I just didn't want you to wory too much if she didn't reply right away.
S.

Chemar 10-19-2009 08:42 AM

yes, this thread is 2 years old and sadly I also noticed a spam affiliate signature
in the person's posts:( which has now been removed

hopeful 10-20-2009 11:48 AM

Hi Kes,
I am so sorry to hear about you having RSD. You are so young it is a lot to deal with. I also did not have swelling or an initial injury and was dx'd about a year and a half ago. I agree with the other posts keep looking for a treatment that will give you some relief. I have had ketamine and will be getting more treatments. I have used lidoderm patches on certain areas and they did help.
Most of all do not give up your hopes and dreams. You have a long life to live yet and I'm sure it holds many good things for you.
Kepp coming back to this site. There are a lot of good people on here who have given me encouragement when I lose faith.
hopeful


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