[wildberry2277]

A Burn you Never Forget
12/02/07

I have a fire buring from with in
However, its not for my goals, dreams, or to win
Those things were all put by the wayside when this
-monster buring inside came alive
It burns like hell and theres no putting it out
-its here to stay and it sure shouts it out
It crushes my shoulder and sends shooting pains to
-my head
The weakness in my hand makes anything
-I touch look like a mess
Numbness that hurts, this I thought would be the best
People and Doctors the ones who should know the best
-tell me its in my head, just take these meds and dont you dare think
-its CRPS
Medications they tell me to take, 45 plus in one day, thats what they say is best
-and yet nothing takes this away even the strongest medications
-just make me sleepy and deppresed, sure isnt the pain relife I was told to expect
This pain may last for many years, the only thing i can do is sit and pray for a cure
Thats the only dream, goal, or wish i have please someone get me out of this mess
Please some one take the pain from all the rest
I have CRPS
Wish, Dream, Pray, Hope, CURE

By: Jacquelina

I dont know I was in so much pain this morning I had to put it some where... and to further make my pain much more unberable, I wrote this.. And i think it is really how i feel... Sometimes its so hard to say how i feel these days because it always hurts and no one here at home understands.... But maybe this will help... or maybe not... P.S. I dont really share this type of stuff very often, i write alot... Its an outlet for my pain....

Hope everyone is doing well... Much love, hugs and pain free days!

[ali12]

WOW wildberry that is fantastic. I totally relate to what you are saying.
I hope the pain is going down now
Take care
Love
Alison

[Sandel]

Good for you I think it's wonderfull, and I do so think it helps to write out how we feel and how it effects us.. I would bring that into your doctors too it may help them to understand.

I had a doctor who wrote in a post surgical not that he thought my condition was in my head.. but he questioned weather RSD realy exists of if I just made it up. dumb quack.

Sory lil rant there.. it just anoys me so much that because they dont understand the pain they just assume we are making it up Grrr... It scars us mentaly to be disbelieved obviously, and then we have more stress that I would call tramatic stress from that aspect as well.. it's a catch 22 the extra stress of not being believed causes us to be more anxious and desperate to be believed and that causes the docs to think more that it's psychological in nature and promotes their disbelief and round and round we go.

That poem needs to be given to your docs Jaquelina.. and may I borrow it? I will be shure your names attached of cource.
Thank you so much for posting it.. we would never laugh at any attempt to explain the pain or how you feel, nay instead we applaud your courage to write and empathise with what you are saying. Bravo my friend and thank you.

Sandra

[wildberry2277]

I dont mind at all if you use it... Sometimes you just have to do somthing with pain and this is my exit... Its so hard for us to expalin RSD and ecspecially for those that think it in our heads and i thought maybe this could help some one understand... Maybe a family memeber just looking on the site... Maybe this will help them understand its not in our head and that our medications are our life line... My brother stole my meds... Very sad... and horribly hard to deal with.. he said the reason he did it wasa because it was all in my head... he is 17... Boo! Oh well it just made me feel good to write and share with everyone...


Much love and hugs to all J!

[Imahotep]

I first posted this back in mid-August.

This is, I believe, an English translation of an ancient Greek translation of one of the oldest writings known. It probably dates from before 3500BC and the original ancient Egyptian has been lost. It's likely that the Greeks took great liberty with it.

Isis was an important Egyptian diety and Horus her son. Men were believed to have been trapped in bodies as punishment for sins.




49. This too expound, O lady, mother of mine! For what cause is it that when men still keep alive in long disease, their rational part--their very reason and their very soul--at times becomes disabled?

And Isis answer made:

Of living things, my son, some are made friends with fire, and some with water, some with air, and some with earth, and some with two or three of these, and some with all.

And, on the contrary, again some are made enemies of fire, and some of water, some of earth, and some of air, and some of two of them, and some of three, and some of all.

For instance, son, the locust and all flies flee fire; the eagle and the hawk and all high-flying birds flee water; fish, air and earth; the snake avoids the open air. Whereas snakes and all creeping things love earth; all swimming things--love--water; winged things, air, of which they are the citizens; while those that fly still higher--love--the fire and have the habitat near it. Not that some of the animals as well do not love fire; for instance salamanders, for they even have their homes in it. It is because one or another of the elements doth form their bodies' outer envelope.

Each soul, accordingly, while it is in its body is weighted and constricted by these four. Moreover it is natural it also should be pleased with some of them and pained with others.

For this cause, then, it doth not reach the height of its prosperity; still, as it is divine by nature, e'en while--wrapped up--in them, it struggles and it thinks, though not such thoughts as it would think were it set free from being bound in bodies.

Moreover if these--frames--are swept with storm and stress, or of disease or fear, then is the soul itself tossed on the waves, as man upon the deep with nothing steady under him.




My doctor keeps telling me to drink more water.

[shiney sue]

Your Dr's advice drinking water is good.. But your writing is such
a benefit to all us on so many posts..Thanks so much,Sue

[wildberry2277]

I was so embarresed lol... but glad i shared it with you ....if anyone benefited from it.. Thats important..

Much love and hugs to all J!

[ali12]

Hi there Wildberry2277,
Please don't be embarresed about sharing your poem with us. It was fantastic. Its helped many people on here
Thanks again
Pain free hugs
Love
Alison

[walkofflame]

I loved it, and think you expressed yourself beautifully. I too write a lot, and find it is a good way to get some of those feelings out. I have found there are some wonderfully talented people in the RSD community - hey we have to do something to keep ourselves sane right!
Keep writing and sharing.....gentle huggs
Kimberly