[dreambeliever128]

This has nothing to do with the RSD but I just wanted to tell all of you that I am going to have the VNS shut down.

As you know I had the VNS put in for depression in April. When I first started with it, it seemed like it was going to help. Then it just did nothing. We have it almost at it's highest setting now and it is actually making my stress, Panic Attacks worse now. It's making my heart feel like it is racing all of the time now.

I see my Dr. tomorrow and I know he will be upset but I am going to have hime to turn it off. I now have my magnet taped to it to shut it off. This is the first time I have ever used the magnet. I was afraid if I did use it I wouldn't want to turn it back on.

I was going to hang on until the 1st anniversary of having it put in which is in April, but I can't do it, nor do I want to.

I know it can work for some but it's not going to be me.

Ada

[ali12]

Hi Ada,
I am so sorry about the problems you are having - I sure hope that you can get the VNS out.
Good luck when you see your doctor and please let us know how it goes.
Many thanks
Love
Alison

[dreambeliever128]

They won't take the VNS out. It stays in forever.

I went to see my Dr. today. He thinks this is a temporary thing. I didn't have the heart to say I didn't want it anymore.

We turned it up a few weeks ago and I am thinking it triggered all of the horrible things I have delt with this week but what really bothers me with it is that I can't shut if off myself and the hospital in our area doesn't even know what they are. My Nurse reaffirmed that to me today as did my Dr.

He thinks too it's due to the holidays and thoughts of Bill. I guess part of it is.

Thanks for your good thoughts girl. I sure hope you have a great holiday season and that the New Year brings you a lot less pain.

It's great to see you on here and so good about answering everyone and showing you care.

Ada

[Sandel]

Hi Ada.. big ((((hugs))))

I am so sory you are going through this with your VNS.. I found it somewhat disturbing my friend when you said it was permanent so I tried to research it and I got some pretty conflicting reports.. I have posted some links below.. did you know that some leads were recalled recently?

Medical Device Recalls Class 2 Recall VNS System Leads: (Nov 28 07)
http://www.accessdata.fda.gov/script...s.cfm?ID=52219

This one says that the leads can't be removed but the bulkier parts can.
http://www.depression-therapy.com/va...timulation.htm

This one says the leads CAN be safely removed from the vagus nerve.
http://www.ifess.org/INS_WSSFN_2005/...STRACT/177.pdf

Hugs bud I know the season is hard on you bein full of memorys an all, might the VNS be too high now?.. kinda like it will only do so much.. and turning it higher is mabie just irratating the nerves now?.. I am just guessing but mabie it is helping more than you know.. and to go past that certain point is just overkill on the vagus nerve and irratating the CRPS.

I may be way off base and you know I am no doctor but I just thought I'd send hugs and links and a thought your way, I know christmas can be a very hard time for some people and you have alot on your plate right now hon.. and you have to give you credit where it is due..(I will) with you my friend.. I admire and respect you so much Ada and I so wish I could help you more through this time.


Sandra

[dreambeliever128]

Thank you for the great websites. I love having you around because you are so good about finding info for people who aren't able to do it. You are just good too.

I am thinking you are right about turning the VNS up. When we first turned it up 3 weeks ago Wed. I didn't see much of a difference but last weekend, all of the problems I had before the VNS just multiplied.

I'll probably work up the nerve after the holidays to let him turn it back up and at it's lowest setting. I do intend to have another surgery though in Jan. so I will wait until that is done.

I have to get my acid reflux calmed down also. I had to up my Prevacid to deal with it. That is one of the side effects of the VNS. It can mess with the intestines.

You are right, it was overkill I think too. It sat off other pain areas and made my pain worse.

Thanks for the all of the good you do for the people on here. I am being honest with you when I say you are definately helping people like me that cannot sit at the computer long to do all of this research. I know it's not easy on you either but I have to commend you for doing it.

You have a great Holiday Season too.

Ada