Does anyone have a problem with not being able to get their hands or feet warm no matter how hard they try?

Or does anyone suffer from excessive sweating that seems to be severly annoying especially when not using 100% cotton clothing?

Thanks for any input!

Love,
Heather

Welcome back. The baby is beautiful.

I deal with both. I am having trouble keeping my feet and legs warm and I am burning up at the same time.

I cannot wear long sleeves in the winter nor sweaters unless I can unbutton or unzip them and throw them off. No sweatshirts at all. Barely long pants.

Here I am at night, with a new furnace, that I thought would solve every heat and cold problem I had. LOL I turn it up, then turn it down. I just wish the thermostat was in the living room so I could just reach over to it. I get my exercise going to the hallway all day long.

I start out with a short sleeve short nightgown on and a fan going. The heat on about 65. I can't get my legs and feet warm so I put on my sweatpants. Then I start getting to hot except for my legs and feet and have to come out of the sweatpants. Not enough covers will keep my legs and feet warm.

I am wanting to get an electric blanket. I am thinking if I had one and kept it at it's lowest, I could keep my legs warm and with the fan going I can be half way comfortable.

Pretty bad when you can remember your nightly ritual of being too cold and hot. LOL

My right hand is always like ice too. That's the one with the RSD the worse. I just can't wear a glove or cover it at night.

I don't know exactly what to tell you about this. It seems the norm for people with RSD a lot of the times.

Welcome back to the forum and enjoy that little one.

Ada

I know that I am not alone now...

I also have to place a space heater in the bathroom while taking a shower because the burning is so bad when I get out. It's when the hot air meets the cold air. Ouch!

I missed you guys so much!

I am back now for good!

Thanks for the Welcoming!

Heather

Hi there,
Yes I also suffer from temperature changes as a result of the RSD. My foots either really cold and blue or really hot and red, it's really strange!
I also suffer from a LOT of sweating on my foot.
Sorry that I can't help you further
Your baby is beautiful
Alison

Old man winter came in with a PAIN LOL. Yeah my right leg and foot will get cold, and it will take a couple of hours to warm it up. Feels kinda weird when one leg is normal, and the other an ice cube.

Already prayin for summer LOL.

I too use a space heater in the bathroom because when the shower door opens it really starts a burn when the cold hits the leg. Even with the heater it still burns, just not as bad as without it.

My affect side gets ice cold people can feel the difference and the sweating I just deal with now I cannot get my body comfy either to cold or to hot so I play with my thermostat allot also. The cold really affects me and makes things worse with my muscles flaring also.

i seem to go in cycles depending on the extremity. my leg, that was the the initial site, is constantly cold and blue while my arm, the latest affected area, is constantly to hot. i look like an idiot regardless of the season with warm clothes on my lower body and a t-shirt on the top. the really weird thing is the lack of comformity among patients, everyone seems to be different. at least when you break a bone or blow out a knee or shoulder the presentation, repair, and recovery are fairly similar.
i do have an electric blanket that i just use on the lower half of my body that seems to solve the problem...the only problem is my boyfriend is a total hot body when he sleeps and the blanket drives him into the guest room
its nice to know i am not alone in my random body...wait that doesnt sound good...oh well you get the idea

Heather,

Cold foot! It seems I can never get it warm enough.

My primary affected area, the left-lower leg, gets swollen, purple and warm. It is even warm to the touch, very much like a fever or infection.

About three years ago, the right foot went just the opposite. Like Allen said, it is like an ice cube. I keep a heating pad under my desk at work and often need to have my shoe off and the foot wrapped in the heating pad turned to high.

I have been visiting my daughter in South Florida and will be in the 100-degree sun and the foot still will not feel comfortable.

I have had several blood circulation tests (another one scheduled for later this month) to make sure there is nothing else going on, but they always are inconclusive. It really is just the old CRPS/RSD acting up.

I don't have any suggestions, just sympathy. Just make sure that is you use a heading pad or something like that, you stay awake and aware. It could be real easy to burn yourself trying to get warm!

Take care.

Mike

My hand and feet are always cold, and have been since the beginning. I haven't found anything to get them warm. I noticed first thing upon getting up my feet are warm for about 30 seconds. LOL Other than that, I can wear 2 pairs of socks and slippers for hours, take them off and my feet feel ice cold to touch after all that! Ah well the joys of rsd! During that time of the month I suffer excessive night sweats and also contend with being too hot or too cold all day long for days on end. Even during the rest of the time I go from hot to cold and back for no reason at all. I can feel really cold, yet sit here and sweat. You're not alone at all!

Hugs,

Karen

Hi Heather,

My hands in the office (mostly) are always cold. My husband and I ordered some thermo gloves (with the finger tips cut off) online. They don't seem to be helping much, but then again it's like below zero in here! (I know the thermostat is wrong, it says 72 degrees) The material isn't harsh at all, so there's no friction feeling.

When my hands get cold (especially the left) I notice I get more achy feelings in the original injured site which is still swollen. I try different things like moist heating pads. I have a blanket on my lap and sometimes curl my hands up in it. Run it under hot water.

Luckily for me, the burning pain has vanished for a little while now so I'm able to try things to cover my cold extremeties. If I had burning still, I understand there is not much you can do when you can't touch anything!

My feet as well, especially the left one affects my knee (where I suspect some spreading). Then again, the cold air on my neck does cause that sun burn feeliing still...but I'm doing a fine job of keeping that under covered under a lose hood.

Good luck, let us know what works!