FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
12-17-2007, 06:03 AM | #1 | ||
|
|||
Member
|
Hi just wanted to post that my pain management dr. just in desperation after a shocking month of level 9 pain put first- me on- the fentynal patch-50 mg. no relief- I had percocet for breakthrough. nothing. at this time I was continuing my neuortin ive been on 1800 mg for 3 years. then since I had no relief from the fentynal patch which was replacing 40 mg of oxcycontin twice a day with percocet for breakthrough- my dr put me on Opana er and Lyrica.
I am not suffering for the first time in 6 weeks. My pain is down to a 4. That is a number I have not seen since the coma or immediatly following my booster infusion. Im so excited. I have had no side effects except increased appetite and since I had no appetite for now that is not a problem. but it is a big dose. 40mg OPana er twice a day with percocet for break through. I did not ahve to take the percocet the first two day- that has never happened before. I usally take all 4 that are allowed. And the Lyrica controlled my burning for the first time. my dose on the lyrica is 150 mg twice a day. Just wanted to post this information in case someone else was suffering as i was. this is the least pain I have been in in some time-- there is hope.CZ |
||
Reply With Quote |
12-17-2007, 09:34 PM | #2 | ||
|
|||
Member
|
Yeah! I am so happy for you! Maybe I will give the Lyrica another shot. Dont forget to ask Dr S about the ECT-
Deb |
||
Reply With Quote |
12-17-2007, 10:31 PM | #3 | |||
|
||||
Member
|
CZ that is terriffic and I am really glad to hear that your finally getting the pain relief that you so need with this beast.
Now, I am on that patch, same Mg. as you and it started working for me in three days. This patch is taking all of the pain away, I am falling asleep sitting up, and often. How long before this patch makes me not so tired, confused, forgetful, I don't know if I should have this lowered? I have been on it since Dec. 4th. of this month!! Again, Cz I am so glad that your feeling so much better without pain. Been there, felt it too!!~Love, Desi
__________________
I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
|||
Reply With Quote |
12-18-2007, 08:42 AM | #4 | |||
|
||||
Magnate
|
CZ,
I am so glad that you are getting the pain relief you need and deserve. I hope you continue to have pain free days. Take care Love Merry Christmas and A Happy new year Alison Desi, I am so glad that you too have got some pain relief from the patch. I hope you continue to have pain free days. Maybe you should speak to your doctor about you feeling tired when you take the patch Take care merry Christmas and a Happy new year Love Alison
__________________
To the World you may be one person, but to one person, you may be the World. Last edited by ali12; 12-18-2007 at 10:35 AM. |
|||
Reply With Quote |
12-19-2007, 12:03 AM | #5 | |||
|
||||
Member
|
Hi Ali! Thanks for the nice reply! Yes, think I may talk to the Dr. why it still is making me tired! I do hope that your feeling much better! How is your arm and hand? still swelled? in pain? I hope you get to feeling better really fast.
Merry Christmas, Happy New year to you, too Sweetie! ~Love ya~Desi
__________________
I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
|||
Reply With Quote |
12-30-2007, 08:58 AM | #6 | ||
|
|||
Member
|
Dear Desi, Deb and Ali, thanks so much for your good wishes- and miricles or mircles its still working. I hope you do give the lyrica another try- we had tried it once and the dose was too low and i went back to neurotin. But Ihave to say I think it is the combination that is wroking. I am on 80mg of the Opana- a high dose twice a day. Euraka. I dont feel drugged, it is just managing the pain. I thanked God for the relief. My brain feels free to think and feel, I went for my booster infusion three days before Christmas- they gave me a big one to get things under control and I am going again next month and haveing someithg new contament blocks with the ketamine infusions. I dont know what it means so Ill let you know when it it over. But the results have been very good. I am always a guinera pig!! But I dont mine- you never know- this could be what puts this monster in remission. Right now I am jsut so thankful for the refief. Mentally I was breading down- the pain was just too much. Also has everyone read the newly published intractabe pain handbooK? It is wonderful and I am following it to the letter. Let me know if you need the website. Thalnk you again anD Desi I too am so happy the patch isworking for you . I gave it a good try 10 days, nothing. It just workds for some and not others. We are all so individual in this. hugs to alll and wishes for a good day for you all. Happy New Year. I am now at 4 years 7 months with the monster. How long have you all had RSD?CZ
|
||
Reply With Quote |
12-31-2007, 12:32 AM | #7 | |||
|
||||
Member
|
Lyrica is helping me quite a bit too but I can't tolerate a very high dose.
I take 75 mg three times a day, any more at a time made me feel drunk like an inner ear drunk.. ick I am however intolerant of alot of drugs. |
|||
Reply With Quote |
12-31-2007, 07:42 AM | #8 | |||
|
||||
Magnate
|
Desi,
Sorry for only just replying, I have been busy with Christmas etc. I am happy to say that my arm is much better, my leg hurts a LOT though. my arm isn't swelled now and the infection looks to have gone although I have got a bit of scar tissue there. My arms hurting a bit today because I have been helping my mom paint my bedroom. How are you? I really hope that you are OK. Happy new year to you love alison
__________________
To the World you may be one person, but to one person, you may be the World. |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
new med Opana ER | Chronic Pain | |||
Avinza or opana | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Amid pain, words began flowing | ALS News & Research | |||
Lyrica doses plus other meds with Lyrica? | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Opana | Chronic Pain |