[gigglebabe]

My question is, I am reading that neurofibroma's are from the nerve...do these dang things have any relation to the RSD symptoms?

I have two huge ones that have come up in my left hand..the good hand...and it's killing me....they are causing pressure on the nerve in the left hand, causing it to go numb, asleep if you wish...causin me to drop things, it bites!

My pain doc, said no surgery on them, because of the RSD in my right hand/arm...because I'm at great risk for spreading of the RSD. So he doesn't want to chance letting me have them removed, and said I'm prolly better off with this happening than RSD spreading...

Any opinions?

Debbie

[dreambeliever128]

Good to see you posting again.

I had surgery in Sept. for a pinched nerve and I also had a lump in that area. If it's not bothering you, don't have anything done. That is the best solution.
I have blocks before my surgeries and I believe it's the best chance a person has to keep RSD from spreading with the surgery.

Hope you stick around girl.

Ada

[ali12]

Hi there,
I agree totaly with what Ada is saying. If the neurofibroma's are NOT bothering you don't have an operation. However if they ARE bothering you, you will need to have something done.
I know it is an hard choice to make, please keep us posted.
Take care and it's nice to see you posting here.
Thanx
Alison

[Debby]

Debbie,
I had/have neuroma's in both feet. One foot I had them out. Big mistake. Made the RSD pain way worse, crippled me I would say. I left them in the other foot & they don't bother at all that I can tell. Now, if I were to have surgery done today I would have several LSB's or SGB's done. And during surgery I would a continual bathing of nerves done with Ketamine. That is what they did while I had major back surgery in 11/05. I had NO spread of RSD at all.

But I agree, if they are not bothering you, don't have any surgery done at all.

Love ya,
DebbyV

[gigglebabe]

Hi Debby,

LTNS. How are things with you? Thanks for the advice...I'll remember to have the tons of blocks done prior to..if I have to have this taken out..its annoying as all get out.

It's nice to meet you to Allison, I'm far from a newbie...I've been around the boards almost 9 years now. I just don't post much, I more or less email. And not because I don't like the boards, the boards are great, it's just sometimes you see, hear and live RSD to the point you gotta take breaks....so I took a long one....ooops...

It's nice to see you all again though

Debbie

[mollymcn]

Hi Debbie,
My friend with RSD (I help take care of her) had a neuroma removed and it made the RSD worse too. She says there is an ultrasound treatment that can help break it up, though, as an alternative to cutting surgery. DO NOT HAVE SURGERY.
Also, as an avid reader of medical journals (I used to be a medical school professor), there are several studies that link RSD to neuromas. so... yet another facet of this horrid disease
Hope you can find some relief soon.