[olecyn]

I'm usually on the TOS forum
My CRPS is getting worse
TOS for 7 years now and its getting worserer and worserer. Thats a olecyn term.
WHY?

I had a ganglion block in Oct and it raised a red flag maybe 2 weeks later.
Had a brachial plexus block Dec 18th and been in a flare for 4 days now.
The defense is trying to say that when I developed cancer 2 years ago during all this it created it.
NO WAY...JOSE.
I was a no walking chronic fatigue and flu like body ache zombie.
Thats why I had NO idea I had any sx's of the cancer with the exception of weird bleeding thinking it was menopause.

What is the most common medication used here?
Why does it progress at weird times?
Why when I went to PT and cardio I felt soooooo much better but the RSD kept getting worse and worse so I pulled off to try and find balance.

[ali12]

Hi there,
I am so sorry about the problems you are having.
Please let me introduce myself:
My name is Alison, I am 12 years old and I suffer from CRPS in my left leg and right arm.

I don't suffer from TOS but I have heard that it is an horrible condition.

Take care and if you need anything I am here
Love
Alison

[dreambeliever128]

I have seen you on the TOS forum.

I lived there for over 6 years so I know of both of what you are going through.

I am so sorry that you developed cancer along with this and hope that you are doing better with it.

As far as the meds. We are all on an array of different ones here so you will hear of a lot of them and you will need to ask your Dr. what he will let you try. Everytime I learn of a new one I ask if I can try it. The Methadone does as much for me as any so I stick with it. A lot on here take antidepressants, meds for nerve spasms, and pain.

As far as PT. I think sometimes with PT you get worse sometimes for awhile and it takes time for it to calm down. I don't believe in aggressive PT. Some on here have it and some believe in it. I just don't think in the shape we are in, it helps to make us do more strenous exercises. With TOS you have to watch your arms and hands also. There are a lot of things TOS people just can't do.

Welcome to the forum.

Ada

[Sandel]

Hi Olecyn..
How is the flare up?
Better I hope..
Healing hugz,
Sandra

[olecyn]

Hubby took me up to LA at 6am last week

Doc has started me on Opana ER
Still in bed, 12 days now or is it 15 or is it 23...geeze
The Opana cut the flare on the way home so fast
Prob is I sleep all day since he wants me on it twice a day for a week until I see him Thurs.
My body is now craving the Opana when I dont take it
Scary.
Now tomorrow I am going to make myself get up and move to see if I can mentally function with it.
Physically it will tell me right away weather I have to go back to bed after my shower and an attempt to get dressed.

He suggested Lyrica or Cymbalta and I squashed that one
Too much negative I have read

In bed with pain.
In bed with drugs.
Now I'm an addict?
I HATE TOS and CRPS!

[Sandel]

Hi there..
I hope the Opana works for you.. Lyrica works very well for me.
hugz