Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 01-10-2008, 03:12 PM #1
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Lyrica, how are the side effects on you?

I was wondering how the side effects are on any of you on Lyrica.

I tried one last night and today I am just so out of it. I slept for hours. That's not me nor what I want.

I have a lot of trouble with meds and not yet sure I can stay on it anyway but wanted to try it. My side effects usually don't go away. It seems to me the more of a med I get built up in my system the more sick I get from it.

When I had the UTI week before last my Dr. put me on Levaquin. He gave me 7 of them and I threw all of them up as I tried them. I tried them on an empty stomach and then a full. I'm allergic to sulfa and I don't think Levaquin has sulfa in it but I sure couldn't do it.

I was just wondering how each of you on Lyrica are doing, what it seems to be doing for you and how it is helping. Another thing today I am having chest pains. That too comes with a lot of the meds I try to take so I don't know what to do about even staying on them.

Thanks for the support. I hope all of you start seeing some better days.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Old 01-10-2008, 04:19 PM #2
ali12's Avatar
ali12 ali12 is offline
Magnate
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
Magnate
ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Default

Alison is on 225mg of Lyrica daily (shes only 12 so not sure how this relates to an adult dosage)
It hasn't made any difference to her pain levels (nothing has at the moment) but it has helped her to sleep - or at least we assume its the Lyrica that has helped with this
Previously Alison was lucky if she managed to snatch a broken couple of hours throughtout each 24 hour period
Now she seems to sleep well for at least 4 or 5 hours straight, though she does seem to be more drowsy during the day too !!!!
Its glad to hear someone else has similar experiences when taking this drug - I thought it was only us !!!
Best wishes
Andrea (Alis mum)
__________________
To the World you may be one person, but to one person, you may be the World.
ali12 is offline   Reply With QuoteReply With Quote
Old 01-10-2008, 05:56 PM #3
Sandel's Avatar
Sandel Sandel is offline
Member
 
Join Date: Oct 2006
Location: Western Canada
Posts: 844
15 yr Member
Sandel Sandel is offline
Member
Sandel's Avatar
 
Join Date: Oct 2006
Location: Western Canada
Posts: 844
15 yr Member
Default Hi Ada and Andrea..

I was very drowsy for the first 3 weeks or so on lyrica.. adjustment period my doc said so I stayed on it, and now I find it works quite well I too am on a small dose of 225 mg because I was feeling a little disorented on the higher dose of 100 mg three times daily.. like drunkish lol.

What dose are you on Ada? hope you are feeling better but try stay with it.. if it seems too much talk to your doc.. it may be that you have to be started on a lower dose.


Last edited by Sandel; 01-10-2008 at 06:15 PM.
Sandel is offline   Reply With QuoteReply With Quote
Old 01-10-2008, 07:09 PM #4
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi girls,

Geez, what kind of stomachs do you people have. They must be made out of steel.LOL

I took a 50mg. of it. I am still out of it and I still am having chest pains from taking it.

My Dr. will be back in town this weekend and he will most likely call me to check on me with the VNS which is a whole nother mess. Not good. I'll tell him about the med then.

I am glad that they are working for you Ali and Sandel.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sandel (01-10-2008)
Old 01-11-2008, 12:41 AM #5
GalenaFaolan's Avatar
GalenaFaolan GalenaFaolan is offline
Member
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
GalenaFaolan GalenaFaolan is offline
Member
GalenaFaolan's Avatar
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
Default

When I did my trial run with it over 2 months it as pretty awesome! I took it just at night and it did let me sleep deeply and normally which is something I haven't done in ages! After a few days that went away so it was good while it lasted. When I upped it to 2 a day morning and night I had another 5 days of slight sleepiness and lightheadedness but then that went away as well.

This seems to be another example though of what works for one doesn't for another. For me, the drug was a miracle. It took away the numbness in my legs, helped the pain just a little, took away the worst of my night sweats and that electrical shock feeling. Too bad it costs so dang much so I can't take it like I want to. Hubby makes to much money to qualify for anything so I could, but oh well, such is life.

Hugs,

Karen
__________________
Laugh until you cry, don't cry until you laugh.

Living, loving and laughing with RSD for 14 years and counting.
GalenaFaolan is offline   Reply With QuoteReply With Quote
Old 01-11-2008, 10:34 AM #6
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi Karen,

Thanks for the help.

I get so angry over hearing a person can't get the meds they need. Bill and I both went through that at different times so I do know what you are saying. I didn't tell my Dr. that I couldn't get a lot of my meds. He gave me all the samples he could. After I got my disability and things changed with the health care system a few years back then Bill started going through it not long before he died.

I know several people who have died due to not being able to get the meds they needed.

I am still having those chest pains today. I wore a lidocaine patch last night to calm it down. This is the first time in about 3 years I have delt with them. Certain meds brings it on. When I see my Dr. next week I will have to get some shots in my chest area to see if it will calm it down.

You're right Karen, certain meds work for some and not others.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Lyrica- side effects- heart issues?? InHisHands Medications & Treatments 11 04-24-2013 01:10 PM
Lyrica Side Effects?? Junie Chronic Pain 36 01-16-2013 07:14 PM
Lyrica Side Effect Question... Gromlily Thoracic Outlet Syndrome 4 08-26-2008 05:12 PM
What side effects? shari Medications & Treatments 4 10-09-2007 11:07 PM
Flexeril side effects anyone?????? Judy2 Multiple Sclerosis 3 07-06-2007 11:35 AM


All times are GMT -5. The time now is 11:57 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.