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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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01-10-2008, 03:12 PM | #1 | |||
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Magnate
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I was wondering how the side effects are on any of you on Lyrica.
I tried one last night and today I am just so out of it. I slept for hours. That's not me nor what I want. I have a lot of trouble with meds and not yet sure I can stay on it anyway but wanted to try it. My side effects usually don't go away. It seems to me the more of a med I get built up in my system the more sick I get from it. When I had the UTI week before last my Dr. put me on Levaquin. He gave me 7 of them and I threw all of them up as I tried them. I tried them on an empty stomach and then a full. I'm allergic to sulfa and I don't think Levaquin has sulfa in it but I sure couldn't do it. I was just wondering how each of you on Lyrica are doing, what it seems to be doing for you and how it is helping. Another thing today I am having chest pains. That too comes with a lot of the meds I try to take so I don't know what to do about even staying on them. Thanks for the support. I hope all of you start seeing some better days. Ada |
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01-10-2008, 04:19 PM | #2 | |||
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Magnate
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Alison is on 225mg of Lyrica daily (shes only 12 so not sure how this relates to an adult dosage)
It hasn't made any difference to her pain levels (nothing has at the moment) but it has helped her to sleep - or at least we assume its the Lyrica that has helped with this Previously Alison was lucky if she managed to snatch a broken couple of hours throughtout each 24 hour period Now she seems to sleep well for at least 4 or 5 hours straight, though she does seem to be more drowsy during the day too !!!! Its glad to hear someone else has similar experiences when taking this drug - I thought it was only us !!! Best wishes Andrea (Alis mum)
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01-10-2008, 05:56 PM | #3 | |||
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I was very drowsy for the first 3 weeks or so on lyrica.. adjustment period my doc said so I stayed on it, and now I find it works quite well I too am on a small dose of 225 mg because I was feeling a little disorented on the higher dose of 100 mg three times daily.. like drunkish lol.
What dose are you on Ada? hope you are feeling better but try stay with it.. if it seems too much talk to your doc.. it may be that you have to be started on a lower dose. Last edited by Sandel; 01-10-2008 at 06:15 PM. |
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01-10-2008, 07:09 PM | #4 | |||
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Magnate
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Geez, what kind of stomachs do you people have. They must be made out of steel.LOL
I took a 50mg. of it. I am still out of it and I still am having chest pains from taking it. My Dr. will be back in town this weekend and he will most likely call me to check on me with the VNS which is a whole nother mess. Not good. I'll tell him about the med then. I am glad that they are working for you Ali and Sandel. Ada |
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"Thanks for this!" says: | Sandel (01-10-2008) |
01-11-2008, 12:41 AM | #5 | |||
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When I did my trial run with it over 2 months it as pretty awesome! I took it just at night and it did let me sleep deeply and normally which is something I haven't done in ages! After a few days that went away so it was good while it lasted. When I upped it to 2 a day morning and night I had another 5 days of slight sleepiness and lightheadedness but then that went away as well.
This seems to be another example though of what works for one doesn't for another. For me, the drug was a miracle. It took away the numbness in my legs, helped the pain just a little, took away the worst of my night sweats and that electrical shock feeling. Too bad it costs so dang much so I can't take it like I want to. Hubby makes to much money to qualify for anything so I could, but oh well, such is life. Hugs, Karen
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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01-11-2008, 10:34 AM | #6 | |||
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Magnate
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Thanks for the help.
I get so angry over hearing a person can't get the meds they need. Bill and I both went through that at different times so I do know what you are saying. I didn't tell my Dr. that I couldn't get a lot of my meds. He gave me all the samples he could. After I got my disability and things changed with the health care system a few years back then Bill started going through it not long before he died. I know several people who have died due to not being able to get the meds they needed. I am still having those chest pains today. I wore a lidocaine patch last night to calm it down. This is the first time in about 3 years I have delt with them. Certain meds brings it on. When I see my Dr. next week I will have to get some shots in my chest area to see if it will calm it down. You're right Karen, certain meds work for some and not others. Ada |
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