Ok.. I agree she would not be the best spokswoman candidate for RSD but how many more people have at least heard of RSD now? as apposed to a few years ago.. I think we shouldnt throw out the baby with the bathwater in this case, I also think that any newsstory that has RSD in it is worth alot to us by getting RSD known, and mabie saving someone a life of pain in the process.

Micheal J Fox was not the first celebrity to get Parkinsons or speak of it just the first to take it on as a cause, Paula is just the first we know of and who has at least let people know this condition exists. If Paula's story can make even one person realise he/she or their child has these symptoms and gets help early..

And ABC News reads the comments section, if enouph of us post our stories.. RSD symptoms.. What to avoid.. They will see that we are a cause looking for a voice.. they can mabie be part of that voice for us.

I think it's up to us now to be sure the right information gets out there as well, this is why I feel that we should at least try comment on these news articals as they come out, to get our storys out there to the general public that reads these storys and the comments, to get some true facts about RSD out there for normal folks to see.

It is free advertising and our campain is just beginning we have to use whatever means we can, we don't have to say weather we support her or not just that there are alot of us out here with a condition that needs to be known by the general public in order to help everyone get early diagnosis and proper treatment. It is so important and needs to be heard.

here is the link to the story:

http://www.abcnews.go.com/Health/Pai...4133950&page=1

And more importantly here is the link to the comments please read and decide for yourself if you want to post and increse or numbers strong for ABC News:

http://www.abcnews.go.com/Health/Pai...ory&id=4133950


Thems just my thoughts..
Thanks an hugz,
Sandra

pssst.. I am RSDSandi in the comments section. This can make a diffrence we have to decide to make a little diffrence each cause nobodys gonna do it for us.