Hi

Saw another artice on Paula's battle with RSD yesterday. I wonder if we want her as our spokesperson. Her loopy over drugged behavior may not be helpful to our cause. I always hope for more awareness but Paula?


Pam

We have talked about this woman many a time. What's funny is no matter how many years we talk about her she is always the same. I can see why they have her on American Idol. They need a clown to help keep the funny in the show. LOL

I actually have an article that was put in our town paper about her about 2 years ago. I ran up on it again last week. In it she says that it is not the meds that she is on that makes her act like a mental case, the RSD itself causes it.
That's the craziest way of getting out of saying she is too over medicated. I have seen many people with RSD and it is sure not the RSD that makes them act like fly by nights with no lights on if they act that way.

We would have to prop her up in front of the congress for her to be able to state our case. LOL

Ada

One other thing I wanted to say about her. I have YET to see one story on tv or in a book that shows her as a person that is not overmedicated. I have yet to see her on tv that she doesn't act that way.

I am sure I read that her doctor retracted the story that she has RSD and now says its all arthritis

Deb
And we do not want her as a spokeswomen! They already made fun of her and RSD on Saturday nite live

Ok.. I agree she would not be the best spokswoman candidate for RSD but how many more people have at least heard of RSD now? as apposed to a few years ago.. I think we shouldnt throw out the baby with the bathwater in this case, I also think that any newsstory that has RSD in it is worth alot to us by getting RSD known, and mabie saving someone a life of pain in the process.

Micheal J Fox was not the first celebrity to get Parkinsons or speak of it just the first to take it on as a cause, Paula is just the first we know of and who has at least let people know this condition exists. If Paula's story can make even one person realise he/she or their child has these symptoms and gets help early..

And ABC News reads the comments section, if enouph of us post our stories.. RSD symptoms.. What to avoid.. They will see that we are a cause looking for a voice.. they can mabie be part of that voice for us.

I think it's up to us now to be sure the right information gets out there as well, this is why I feel that we should at least try comment on these news articals as they come out, to get our storys out there to the general public that reads these storys and the comments, to get some true facts about RSD out there for normal folks to see.

It is free advertising and our campain is just beginning we have to use whatever means we can, we don't have to say weather we support her or not just that there are alot of us out here with a condition that needs to be known by the general public in order to help everyone get early diagnosis and proper treatment. It is so important and needs to be heard.

here is the link to the story:

http://www.abcnews.go.com/Health/Pai...4133950&page=1

And more importantly here is the link to the comments please read and decide for yourself if you want to post and increse or numbers strong for ABC News:

http://www.abcnews.go.com/Health/Pai...ory&id=4133950


Thems just my thoughts..
Thanks an hugz,
Sandra

pssst.. I am RSDSandi in the comments section. This can make a diffrence we have to decide to make a little diffrence each cause nobodys gonna do it for us.

That is a good article, especially about the firefighter.

As far as Paula Abdul. I still feels that she does nothing for the cause. When I read that second to last paragraph, it sounds like she is cured of RSDS. I don't feel that there is a cure yet. Now she only has Arthritis and something else.

Also, if she is on meds that aren't as strong as some of the others, she sure acts like she is. If people really watch her when she is on tv to talk, you never see her acting like she is not high on something.

I would rather have the firefighter as the spokesmen even though he isn't famous.

Yes she is getting the word out there that RSD exist but she is also such a joke that people most always makes fun of her.

I still feel like she is a poor cause for an RSDS spokesperson. If she is cured then she's not going to fight for the cause anyway.

Thanks though for the great articles you give us.

Ada

Although I do agree with everything Ada said we all should definately respond to the link sandel gave us to tell our stories about RSD- In your story you can always say "unlike Paula my RSD......and has destroyed my life!! Please everyone write in!!!!

I will but my story in later today

Deb

I will write in also. There is absolutely nothing wrong with us getting something out there to get RSDS more well known.

Ada

I wrote in...I am nopainever!!!

I am very opinionated on this topic...I am so happy this was brought up.

When Paula Abdul first anounced that she had RSD, was when I 1st found out I had it. At the time, I was so afraid of the disease, that I was so happy to know a celebrity to have it. Now, I am not so happy to know that she has it or might have it.

Then the "loopy haze" she seemed to parade around in. I was hoping that phase was going to pass and she would start making more sense because she is powerful enough to raise awareness to RSD.

Then she didn't talk about RSD for along time. Did anyone watch her show? I watched every single one....and through alll the breakdowns, drama, dr appts, therapy treatments, the disease was never mentioned. I couldn't understand why? Was she hiding it?

I did post my comment on there....Thanks guys Sandra for posing that Link...Nice seeing you on this site also....lol

to all,
Heather

Hi there,
I think if Paula Abdul does have RSD then I would like a dose of the RSD she has because her activity level and lifestyle does not appear to be the one of someone who is badly affected by this disease.
The drug she was prescibed is one that is used for severe arthritis, I wonder if the diagnosis was just a little premature in her case but she has used it as a means to explain her bad behaviour.
Cheers Tayla

I think mabie she has the intermittent type.. every time she's in a car acident.. or her plane wreck she gets it again.. happens with some.. expecialy if the first RSD is as a youth.. remission, reinjury, remission reinjury etc..

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Here's a transcript from when Paula was on the Larry King show, it aired May 19, 2006:

KING: Pottstown, Pennsylvania. Hello.

CALLER: Hi, Paula. I have RSD, and I've read that you have or had RSD? Can you tell me where you are with it now? Or what is going on?

KING: What is it?

ABDUL: It's reflex sympathetic dystrophy, and it happens when you have trauma caused to your spinal cord. Mine being partly from the plane crash, being hit by -- you know, in a car accident. And you know, being a dancer, I'm sure that we're masochists.

KING: So how do you treat it?

ABDUL: There is no solid cure for RSD. And I'm really sorry that you have that, and I feel for you. It is one of the toughest things. A lot of people won't know -- a lot of grown men would never be able to deal with the kind of pain...

KING: Really?

ABDUL: It is so intense. But I have found a wonderful doctor who is an immunologist, works with (inaudible) medicine, and he has found -- and this is what I love about medicine -- you can find a cure for eczema or psoriasis, and it happens to be something that acts like Botox to the nerve pain, nerve damage. And by taking a drug called Enbrel, which is for eczema and psoriasis, it allows my nerves to not freely glom onto each other, and it's been an incredible relief.

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