Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 01-23-2008, 11:10 PM #11
frogga's Avatar
frogga frogga is offline
Member
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
frogga frogga is offline
Member
frogga's Avatar
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
Default

Thanks all of you! It's nice not to feel so alone with all of this.. it's been pretty isolating..

This is going to be a short generalised reply...

Firstly I went to see my GP about it (PCP) and he doesn't know what's happened or why. NHS won't do an MRI scan as an emergency (apparently). So have had some blood tests done (though amusingly I passed out 8 times on the way to the surgery (6 minute walk from my house) and it was him that (nearly) passed out when I had the blood taken!! Bizzarely had no neurology work up. I'm passing out slightly less - apparently about 40 times today including one where I fell from my wheelchair onto the floor! However I'm getting amnesia episodes where I can't remember what's happened or conversations I've had etc which is pretty scary!

Sandel - thanks so much babe... problem is in the UK you wait years for some appointments and there's very little you can do to hurry them up! So though the GP reckons some type of autonomic disorder and I'm positive on a tilt table test I haven't seen the consultant yet. Otherwise, much more emotional, low blood pressure, high pulse, low blood sugar levels, dizziness, loss of vision/ double vision, paralysis, extreme exhaustion, amnesia/ amnesiac episodes, frequent faints (40+ day) and fits (5+ a day). Increased pain... inability to go over any form of bump or movement of my back and neck so can't tolerate any form of step at all. I love vanilla - thanks babe!

Hey heather - I haven't got a PM from you??! how are you doing? I finish this semester in the Summer but have a couple of weeks off at Easter. I've just cancelled some of my work for now and will just try and take it slowly.
Much love and thankyou ... this thing is scaring me quite alot!!

Love ya

Frogga xxxxxxx
frogga is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Anyone going to talk Jennifer Hydrocephalus 4 08-09-2008 01:14 PM
help, someone, anyone to talk too steash Coping with Grief & Loss 13 10-26-2007 04:14 PM
need to talk LENNY New Member Introductions 6 07-09-2007 02:33 PM
Anyone around to talk Peg24 Thoracic Outlet Syndrome 0 12-10-2006 02:46 PM
anybody want to talk about T day? Mari Bipolar Disorder 5 11-18-2006 03:42 PM


All times are GMT -5. The time now is 06:18 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.