Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-23-2008, 06:40 PM #1
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GreyHoundLover GreyHoundLover is offline
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GreyHoundLover GreyHoundLover is offline
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Join Date: Nov 2007
Location: MASS
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Help UPDATE-Rheumatologist Appointment!

Hi Friends!

Re-Cap
I was scheduled, finally for a SGB about a week and a half ago but the doctor at the Pain Clinic who was to give me my shot, (now after all this and inspite of all the specialists I've seen), said she felt my doctors handed me a "WASTE BASKET DRX" and they should have ruled out other possibilities for my spreading nerve disorder such as Lyme, RA and to go to a Rhuematologist for some tests etc. Also, she said it's rare to see CRPS/RSD in more than one extremity so something else MUST be going on.

I've seen a Rheumatologist today, per her suggestion. He said the doctor at the pain clinic who did not give me my block was essentially incorrect in not giving me the shot and fully agrees with my doctor! That I indeed have Complex Regional Pain Syndrome/RSD and that it has spread. (He knew about the spreading) He was actually quite knowledgeable about the entire thing... I was surprisingly impressed today

He said she, (the doctor at the Pain Clinic) was somewhat arrogant to say such things after having seen all the Specialists I have been through and to STOP my pain control. AND to insinuate none of these other specialists wouldn't have thought to check for such obvious other causes. In other words...my symptoms would have been way more obvious if they were indeed these other things as they are more common than what I have!

He's sending his report to the doctor who sent me and said that he is going to recommend another Pain Clinic in Boston to help me with my pain. (

I'm going to have the Tick Test and my Blood Sugars tested though, in case I run into this bull again!

Okay...here we go again folks!!!!!!!!!!!!!!!!!!!!!!!
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