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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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It's so good to see braintalk back up and to see all of old familiar names posting messages.
I am still doing great. No signs of RSD for almost 2 yrs now. I have been officially discharged from medical care and documented as " a miracle". For those of you who do not remember my story, I was diagnosed with RSD from an ankle sprain in sept 2001. I spent 4 yrs trying everything from the standard medical treatments( drugs, blocks, week long inpatient epidurals, ketamine) to alternatives (HBOT, accupuncture, cranial sacral, applied kineisiology, aqua therapy, herbology, passive yoga,...). My doctor was the infamous Dr. Daniel Carr, who at the time was one of the big name doctors treating RSD. He told me to give up and stop trying to cure myself. I prooved him wrong. I finally found a doctor who theorized that I might not have RSD after all. That maybe I had 2 entrapped nerves in my ankle( the superficial peroneal and the sapheneous). I had told doctors for years that these 2 nerves were trapped because over 20 years ago I had an entrapped ulnar nerve in my elbow and the pain was exactly the same but no one would listen to my theory. Once this doctor came up with the idea, my chiropractor( Dr. Michael Miller) said he could make some adjustments to the bones in my foot/ankle/heal/toes and maybe it would help. Well, within 10 days my RSD symptoms completely disappeared! It has taken me over 1.5 yrs in rehab and pt to get back everything I lost from 4 yrs of being unable to walk. It was not an easy road but it had a rainbow at the end of the storm. I have gained back the 30 lbs I lost and look like a healthy human being again. My coloring is back and I don't look like I'm ready to die. My black foot has no signs of discoloration and there are no tempurature changes. The only sign left that anything ever happened to me is a scar on my face from an RSD-blister. I also have no limp. I have been waiting for the forum to get back up and running to post this for a very long time and hope that my story can somehow inspire other's to keep fighting to get better. If I can then so can you! If there is anything I can do to help anyone, please let me know. If I can help just 1 person get better, then maybe, just maybe the pain and suffering I endured will be somehow worth it. Peace and Hope to all, Lisa |
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