does anyone ever notice, or experience, in whatever body part is primarly the source of pain or injury (ie, for my the original injured happened to my right shoulder and has sperad since), any almost "uncontrolled muscle movements?" I am not talking about tics or anything of that nature, but, I sometimes feel, or notice, that, when attempting even simple everyday activities, when it comes to my right arm, that it doesn't, perhaps get the correct signals/commands from my brain (if that makes sense). I seem to be more uncoordinated I guess would be the best word......is this normal with RSD? Does anyone else out there experience this? If so, why does it happen? Is it something to genuinely be concerned about?

Hi there,
Yes I do notice uncontrolable muscle movements. My toes spasm and my leg shoots out in front of me whenever I am walking. It is horrible and really embarrassing. The muscle up from my big toe cramps all the time too.

I don't think the spasms are anything to be really concerned about I think it is just another side effect of the RSD. I would speak to your PM doctor about what you are experiencing though. I was and still am really concerned about my balance problem, my PM doctor says that he's never seen it before with RSD.
Hope this helps and if you need anything else just ask
Thanks

and I have had seizures in my legs so bad that I had to go to the ER twice by ambulance...I think the Topamax really controls this now...

I haven't noticed it as much now since I am considered stage III (late stage CRPS)...

But, I would imagine since the disease is neurological and the disease has motor function problems...that your case would not be unheard of.

Love,
Heather

Yes i have them too... No pain ever... I know what you are talking about i have had seziuers that spread.. It started in my right arm and then down in my leg where there is no RSD... Very scary and hard to deal with... I posted a while ago about having mixed signals when i try and attemped something or even when thinking about something... Sometimes i will just be thinking about a typing or scratching my arm or any normal thought and my hand will start making the motion needless to say my PM thought i was crazy ... he asked me to start seeing a psychologist... I was like maybe i am carzy lol

Love J

I hate when they tell us that we are crazy...

It sucks cause all of us will hear it at least once, right?!

How long have you had RSD? and how did you get it?


Heather

Muscle spasms and uncontrollable jerking of the limb(s), weakness and a slow response time are all a part of RSD. Pretty much everyone with RSD has an issue with this and takes a muscle relaxer to help stop the spasms and jerking. Of course, as with everything else to do with RSD, we all experience it to a different degree.

I take baclofen and it has stopped the jerking of my arms and legs and I may get some annoying muscle spasms once or twice a month. I consider it my miracle drug and glad I don't have to end up hurting more cause of things jerking so long and so hard.

Hugs,

Karen