Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 01-30-2008, 11:09 AM #1
Vicc's Avatar
Vicc Vicc is offline
In Remembrance
 
Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
15 yr Member
Vicc Vicc is offline
In Remembrance
Vicc's Avatar
 
Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
15 yr Member
Default Hair Loss

In the thread, Symptom Migration: My Story, I wrote about how antioxidants can protect against symptom migration. I have written a lot about the role of oxygen free radicals (OFRs) in this disease, and have long believed that these OFRs are responsible for my hair loss too, but couldn’t find a way to prove it.

I self-experimented by combining a tiny amount of the antioxidant, DMSO, with a large amount of hair conditioner, and I lost chunks of hair: Don’t try it. I tried distilling grape seed extract (GSE), but that didn’t work either.

Then I saw a hair-color commercial advertising it contains antioxidants: My daughter read every shampoo label at Wal-Mart and finally found one that had the word “antioxidants”; she bought it, I tried it, and I noted a significant decrease in hair in my brush.

But I began too late. Shampooing had already become too difficult for me. I had to ask my wife to cut my “Willie Nelson” hair because I couldn’t keep it clean and brushed anymore. (Yes, I’m that weak and still getting weaker). Normally, I wouldn’t say anything until I was certain, but I can’t do that this time; it would never get said, so:

I’m suggesting that anyone concerned about hair loss try using NEXUS Aloe Rid shampoo.

Try it for a couple weeks and see if it works for you. If it does, you might want to read my symptom migration story again; you might decide to spend $10.00 or so a month on GSE to see whether I’m right about that too.

A lot of things can cause hair loss, but if this shampoo prevents it, OFRs are to blame. I think they’re to blame for symptom migration too, and I wish prove it but I can’t. All I can do is say that it is too late for my hair, but it might not be too late for you…Vic


If naming a specific brand violates the TOS. I hope the mods will replace it with the words “trying any shampoo that has the word antioxidants on the label”.
__________________

The great end of life is not knowldege but action. T. H. Huxley

When in doubt, ask: What would Jimmy Buffett do?


email: :
.

Last edited by Vicc; 01-30-2008 at 04:40 PM. Reason: just being me
Vicc is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sandel (02-09-2008)

advertisement
Old 01-30-2008, 02:53 PM #2
Marla's Avatar
Marla Marla is offline
Junior Member
 
Join Date: Jan 2008
Location: Abilene, TX
Posts: 65
15 yr Member
Marla Marla is offline
Junior Member
Marla's Avatar
 
Join Date: Jan 2008
Location: Abilene, TX
Posts: 65
15 yr Member
Default

I had noticed hair loss when my RSD went full body, but it didn't last too long due to the vitamins which have the antioxidents in them. Now the hair loss on my legs and underarms....that doesn't bother me one bit...hahahahaa.
Thank you for sharing this awesome information with us.
Love, Peace & Blessings,
Marla
RSD Coach TM
Marla is offline   Reply With QuoteReply With Quote
Old 01-30-2008, 08:44 PM #3
allentgamer's Avatar
allentgamer allentgamer is offline
Senior Member
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
allentgamer allentgamer is offline
Senior Member
allentgamer's Avatar
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
Default

I never was real hairy, but did have hair on my legs and chest. I still have the hairy chest, but my legs now look like I shave them.

My wife wishes she had that problem lol.

Sometimes I worry a little teeny bit about why the hair on my legs has disappeared, but not enough to lose hair over
__________________

.
Gone Squatchin
allentgamer is offline   Reply With QuoteReply With Quote
Old 01-30-2008, 10:33 PM #4
GreyHoundLover's Avatar
GreyHoundLover GreyHoundLover is offline
Member
 
Join Date: Nov 2007
Location: MASS
Posts: 110
15 yr Member
GreyHoundLover GreyHoundLover is offline
Member
GreyHoundLover's Avatar
 
Join Date: Nov 2007
Location: MASS
Posts: 110
15 yr Member
Heart Free Electrolysis

Thanx for posting Vic!

I totally worry about the hair on my head, especially since I have some symptoms in my mouth and have had flares go to my scalp and eyes.

Marla...I agree! I'm not complaining about the lack of hair in certain areas either, to me it's like Free Electrolysis! LOL
I just wish the other junky symptoms didn't have to come with it!

Love and pain free dreams to all..

GHL
__________________
myspace.com/asiliveandbreathe
GreyHoundLover is offline   Reply With QuoteReply With Quote
Old 02-09-2008, 07:12 AM #5
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
Default Thanks Vicc, Im going to try it.I have significant hair loss

Quote:
Originally Posted by Vicc View Post
In the thread, Symptom Migration: My Story, I wrote about how antioxidants can protect against symptom migration. I have written a lot about the role of oxygen free radicals (OFRs) in this disease, and have long believed that these OFRs are responsible for my hair loss too, but couldn’t find a way to prove it.

I self-experimented by combining a tiny amount of the antioxidant, DMSO, with a large amount of hair conditioner, and I lost chunks of hair: Don’t try it. I tried distilling grape seed extract (GSE), but that didn’t work either.

Then I saw a hair-color commercial advertising it contains antioxidants: My daughter read every shampoo label at Wal-Mart and finally found one that had the word “antioxidants”; she bought it, I tried it, and I noted a significant decrease in hair in my brush.

But I began too late. Shampooing had already become too difficult for me. I had to ask my wife to cut my “Willie Nelson” hair because I couldn’t keep it clean and brushed anymore. (Yes, I’m that weak and still getting weaker). Normally, I wouldn’t say anything until I was certain, but I can’t do that this time; it would never get said, so:

I’m suggesting that anyone concerned about hair loss try using NEXUS Aloe Rid shampoo.

Try it for a couple weeks and see if it works for you. If it does, you might want to read my symptom migration story again; you might decide to spend $10.00 or so a month on GSE to see whether I’m right about that too.

A lot of things can cause hair loss, but if this shampoo prevents it, OFRs are to blame. I think they’re to blame for symptom migration too, and I wish prove it but I can’t. All I can do is say that it is too late for my hair, but it might not be too late for you…Vic


If naming a specific brand violates the TOS. I hope the mods will replace it with the words “trying any shampoo that has the word antioxidants on the label”.
Hi Vicc- thakns Im going to try it. I have significant hair loss especially since the coma. Of course they had to cut big chunks of my hair out that had become matted. But I did a Donald Trump until about two weeks ago and went in to a hairdresser and had my long hair(8" of it!) cut off. I have to tell you I love it. I never thought I would have short hair. but like you this is becoming diffucut for me with my arms remaining weak. thaks for the ost Ill let you know if my hair loss slows down. CZ
CZZ74 is offline   Reply With QuoteReply With Quote
Old 02-14-2008, 03:43 PM #6
countrymom countrymom is offline
Junior Member
 
Join Date: Jan 2008
Posts: 28
15 yr Member
countrymom countrymom is offline
Junior Member
 
Join Date: Jan 2008
Posts: 28
15 yr Member
Default

Thanks for this. My Grandfather went bald at a young age. My Grandmother, mother and her twin sister had such hair loss that they wear wigs. Now with the RSD I don't hold out too much hope. I told my husband that when the time comes I am getting all the different colors of wigs I can and he can sleep with a different woman every night! LOL LOL Also I figure if I start my day as a blonde and it isn't going well I'll change hair color and see if it goes better! LOL LOl LOL
countrymom is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Hair loss and sinemet? Judith Parkinson's Disease 14 10-24-2007 10:08 PM
Hair Loss Vicc Reflex Sympathetic Dystrophy (RSD and CRPS) 8 04-05-2007 12:14 PM
Hair loss Curls47 General Health Conditions & Rare Disorders 7 03-14-2007 05:37 PM


All times are GMT -5. The time now is 07:36 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.