NeuroTalk Support Groups - New to site but not to RSD

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - New to site but not to RSD (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/37836-site-rsd.html)

[FONT=Georgia][COLOR=Purple]Hi Ada,

I can't wait for my first Talk Show next week...I am so excited and I am thinking about doing 2 shows a week about all sorts of pain related issues as well as daily "Challenges" people face, because one persons challenge in one form can help another person with their challenge in another form. Know what I mean?

Love, Peace & Blessings,
Marla

Quote:

Originally Posted by Debby (Post 204353)

I too live in Northern Calif. We live in a small community. We have a small courtry grocery, post office & florist & a couple of places to eat. But we are surrounded by pines, cedars, scrub oaks, & there are many orchards & vineyards around us. We too have snow...................which I am surely sick of this year already :rolleyes: We too live at approx 3200 ft. I moved here from Iowa about 8 yrs ago. I guess I will look Neurotropin up to see what classification of drug it is if it has helped that much. Is it due to be released for public use any time soon?

Welcome to this website & sorry you have to deal with this monster also. The 3 little guys in the picture with me are my grandson's. I need to change the picture, it is over 1 yr old. The baby is now 2 yrs old. But it is a favorite of mine.

Debby

Hi Debbie, it is nice to meet you. Your kiddies sure are cute. Yea we have had more snow than usual also. Not real deep though. Neurotrpin is still being studied and I have no idea how much longer it will take. They still need more people, the rsd has had to be diagnosed within one year or they won't take you. But it is great for those just diagnosed and they pay for everything so no pinch on the budget. Take Care Marilyn

Quote:

Originally Posted by dreambeliever128 (Post 208038)

I'm glad you found your way back. There for a few days I thought you lost your way here.

I am glad you are in remission. It helps show other people that it is a big possibility to get there.

Marla, Your place sounds beautiful. The only thing I don't have on your list is the fractures but I do have IC, CSS, TOS, and way to many others to mention.

I like your ideal of a radio talk show. You will learn a lot that way and help a lot.

Ada

Thanks! Just trying to figure out how this site works. Then had to take a break for the block and the biopsy which they decided to do an ultrasound guided fine needle aspiration so, YEA I avioded being cut on. The fluid is begnin so again I feel so blessed. They are changing some of my meds and I am to go to physical therapy but we expect these changes, don't we? Thanks again and Blessings

[arilyn,
We currently have 200 acres and in the process of purchasing another 400 for wheat. It is nice at times, I think the best place to be is the boat dock we have over one of the stock tanks. I will see if I can find a picture of the boat dock, and of the place and post on here.

Yes, ma'am I have Full Body RSD, Full Body Osteoporosis with High Risk of Fracture, MS, and Fibromyalgia. So I am loaded with it all, talk about not sure where the pain is coming from....man oh man....hahahahaha. That is why I made it my goal to study hard and become an RSD Coach TM, because I was told all the other issues most likely occurred because I have RSD, so I sincerely believe it is meant for me to do what I can for whom ever I can. The link to my website is in my profile, if you would like to check me out, ya know, make sure I am who I say I am. There is a journal on there as well where you can read things I have done, etc., and I will be doing my own 1 hour radio talk show a week, starting on Feb. 12th about all my diagnosis', as well as those who dial in, and their stories, suggestions, etc.. Should be tons of fun, I am looking so forward to that.

I understand your being hesitate about the dentist, and I can't say I blame you. I have nothing against my dentist, bless his heart, he followed the guidelines I took him that were provided from but my crazy body decided it just wanted to act bizarre and totally go out of control completely. It was a "horrible" time!! But it's such a learning process, Do you feel as if you have learned a lot about yourself since being diagnosed?
I sure have, and some things I really didn't want to know....hahahahaha.

I look forward to getting to know you better.

Love, Peace & Blessings,
Marla
[It sounds like your husband was the hit of the radio show. Yea, he sounds like a keeper! It sounds like you have a large operation going on there. It must keep both of you busy. Don't you just love the country life? I wouldn't trade it for anything. Though I do admit I miss the animals, the smell of the hay, but not mucking out the barn! LOL You are truely an inspiration and I wish you luck with your radio show and coaching business you will truely be touching lives, lives that need the touch of a godly woman. And man, lets not forget about you wonderful husband. Blessings, Marilyn