Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-16-2006, 02:13 AM #1
HereInBakersfield HereInBakersfield is offline
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Post Hi - I am Joseph

I have RSD due to 3 surgeries on my right shoulder and an anterior foraminotomy on my cervical spine to try to open the pathway for the nerves in my shoulder.
I found this site thru MySpace and I am looking for people to give me support and I will give it back.
It is very late tonight, and I need to bring my son into the house. (I am in my converted garage / web & graphics design studio).
I will log in tomorrow.


http://www.myspace.com/hereinbakersfield

http://www.northwestvoice.com/home/User/damiano
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Old 12-16-2006, 08:56 AM #2
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Default Welcome

Hi Joseph and welcome to our group. You will find a lot of emotional support here- You may want to share if you have had any successful treatment for your RSD.....Ask questions and vent as much as you need to..

Debbie
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Old 12-16-2006, 10:33 AM #3
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Hi Joseph and welcome
I am in sunny Bakersfield too so welcome neighbor I have had RSD for 3 years now since a fracture to my left arm and just had carpal tunnel surgery in that same arm last week. It is all a struggle but I made it thru college and am graduating in April with my degree soooooo..... hang in there! You will get lots of advice here so once again...WELCOME NEIGHBOR

Debbi
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Old 12-16-2006, 02:06 PM #4
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Hi Joseph,
I see you are a musician too, the mention of your shoulder pain and making more room for nerves makes me think of TOS = thoracic outlet syndrome.

Have you heard or read about that?

and a few starter info links- to compare any other symptoms- just in case =TOS isn't a well known condition either
TOS info:
http://www.nismat.org/ptcor/thoracic_outlet/
http://tos-syndrome.com/newpage12.htm
http://tos-syndrome.com
http://www.acofp.org/member_publications/thoracic.htm

we have a forum here also-
http://neurotalk.psychcentral.com/forumdisplay.php?f=24
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Old 12-16-2006, 06:49 PM #5
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Hi Joseph,

Welcome.......

I am fairly new here also and I think you will find this site a wonderful place for information, commaraderie and a place where you don't feel alone in your struggles.

Sincerely,

Judy
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Old 12-19-2006, 09:09 PM #6
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Hi Joseph,

Glad you found us, do come and join in whenever you have time. Graphics, huh? Me too...
all the best
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Old 02-02-2008, 11:26 PM #7
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Default Thank You, I have not been so fast to reply...A Year!!!!

I have had a lot happen in a year. I apologize to you and each other person in this community that I just got detached from.
I caught my wife in a 3+ year affair, about a week after our 8 th year anniversary. She just left, she flew out and left me and my (our) son for almost 45 days before establishing contact and making/adhering to custody, and all other related issues.
It is hard to believe that it was 12-15-2006 at 11:13 PM when I wrote this message, especially feeling like the loneliest-betrayed man in the world.
I have only just begun again to research this infliction and become informed as my life has calmed down a little bit.

I will look into your responses and get back to you.

I am so overwhelmed by life too, it only makes my daily excruciating pain worse. The only relief I have had is was when I was hospitalized for Gallstones. I was given something called Fetanyl and It was like a miracle. I know there is a patch which provides a 24 hour delivery which sounds like a superior pain delivery solution over the myriad of what I take now- 8 (10 mg) methadone, and 4 (5mg) of percocet per day plus 8 (300 mg) of neurontin and 3-5 Lidocaine patches placed on the right side and all the way to the right side of my right triceps/biceps location.

I placed a shortcut to my desktop so I can communicate effectively but I still have some really bad days so please forgive and understand me in advice.

Thank you--

Joseph
================================================== ========

[QUOTE=Jo55;50381]Hi Joseph,
I see you are a musician too, the mention of your shoulder pain and making more room for nerves makes me think of TOS = thoracic outlet syndrome.

Have you heard or read about that?

and a few starter info links- to compare any other symptoms- just in case =TOS isn't a well known condition either
TOS info:
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Old 02-02-2008, 11:37 PM #8
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Default I apologize for my absent minded year delay to reply to your post.

Hi Debbie,
It is nice to have someone local to chat/talk with besides the local RSD group on MySpace which is really too young and not at my particular social/intellectual or experience reality at all.
I have had a lot happen in a year. I apologize to you and each other person in this community that I just got detached from.
I caught my wife in a 3+ year affair, about a week after our 8 th year anniversary. She just left, she flew out and left me and my (our) son for almost 45 das before establishing contact and making/adhering to custody, and all other related issues.
It is hard to believe that it was 12-15-2006 at 11:13 PM when I wrote this message, especially feeling like the loneliest-betrayed man in the world.
I have only just begun again to research this infliction and become informed as my life has calmed down a little bit.

I am so overwhelmed by life as it only makes my daily excruciating pain worse. The only relief I have had is was when I was hospitalized for Gallstones. I was given something called Fetanyl and It was like a miracle. I know there is a patch which provides a 24 hour delivery which sounds like a superior pain delivery solution over the myriad of what I take now- 8 (10 mg) methadone, and 4 (5mg) of percocet per day plus 8 (300 mg) of neurontin and 3-5 Lidocaine patches placed on the right side and all the way to the right side of my right triceps/biceps location.

I placed a shortcut to my desktop so I can communicate effectively more often, but I still have some really bad days so please forgive and understand me in advance.

Thank you--


BTW, I am turning a young 48 on 2/14/08. I an in great need of new local friends and have lots of time to have coffee or just talk. I am medically retired.
Joseph

Quote:
Originally Posted by debbiehub View Post
Hi Joseph and welcome to our group. You will find a lot of emotional support here- You may want to share if you have had any successful treatment for your RSD.....Ask questions and vent as much as you need to..

Debbie
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Old 02-03-2008, 02:51 AM #9
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Hi Joseph and Welcome to this great forum. There are so many wonderful people here, I am sure you will enjoy it here.

I am so sorry to hear about your recent marital situation, I am sure that does make your life even harder to deal with.
I hope you are able to get some relief from your daily stress life soon.

Much Love, Peace & Many Blessings to you,
Marla
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Old 02-03-2008, 04:34 AM #10
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Hi Joseph
I didnt even see your first post, so it is like meeting you for the first time. So sorry to here about all life has dished out to you, but glad to see your a positive person. That is a very important aspect of dealing with RSD, and all of what life can throw at us.

Sent ya a friend invite on myspace, plus I live only a couple hours from you in clovis. Glad you found this forum as it is one of the best places to come for friends that understand, and lots of good info.

I turn 49 on the 24th. I heard that you turn 30, then your pushin 50, but thank god we havent hit 70!
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