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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-05-2008, 10:55 PM | #1 | |||
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Magnate
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For 3 years I wrote to the Governor and Senator over having to have prior authorization for my Methadone and having to fight my insurance to get it. About a year ago they emailed me and said they did away with the Prior authorization of it.
Last week I wrote again to the Senator after 5 years of fighting for my Prevacid. What I found is that my poor Nurses got tired of filling out the paperwork only to have it sent back to them that is wasn't filled out right. I got an email back from him the same day saying that it was something he thought he could help me with. The next day, I got a letter from my insurance that I no longer need prior authorization for the Prevacid. Thank God for all miracles big and small. I got my disability with the help of a State Rep. I have learned that you have to fight for everything you feel you need to get better in this world. I wish others would do this. What I notice is that you have to get healthier in some ways to do it. It took me 8 years to get to where I could mentally fight for what I believed in. I just wanted all of you to know that we do need to write these Politicians for help and to state our feelings about anything going on anymore. Ada |
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02-06-2008, 12:46 AM | #2 | |||
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Co-Administrator
Community Support Team
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It doesn't hurt to write and ask them, the worst they can do is say no or ignore you...
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Search NT - . |
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02-06-2008, 01:24 AM | #3 | ||
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Member
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Last summer I found out that Social Security has mistakenly denied me a widow's pension. I receive a letter from them that said they had to determine if I had received SSI so they could deduct the amount from what I was owed. I did not get SSI, so it should have been easy for them to pay me. I waited three months and called the SS office because I had not received any money. I was told to wait another three months and if I did not recieve anything by then, to call them again. I was told there was a backlog so I had to wait.
I wrote a letter to my state representative, and eleven days later, I got my money! I was so relieved because I had been living with the help of my credit card for years. All this time I had been been below the poverty level. Now I am just poor (Ha Ha). When you call the SS 800 number it may be a good idea to call again to get another opinion. When I called years ago, I was told I had to wait until I was of retirement age just to get any information about my former (deceased) husband's account. All this time I was entitled to a widow's SS benefit. I struggled needlessly for years. The lady I spoke to on the phone obviously had no idea what she was talking about. You are so right. If you need help, as someone in a position to get results. Regards, Lil |
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02-06-2008, 09:57 PM | #4 | |||
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Junior Member
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So Lil, Do you get all those years that you didn't receive the widow SS benefits
paid to you now?? I know it's probably too much to hope for, but I was curious if they would retro your benefits back to your original eligibility date or not. I personally didn't have to much of an issue receiving mine, but it urks me that I have to be on it for 24 months before I am eligible for Medicare benefits. Did anyone else have that problem? Love, Peace & Blessings, Marla |
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02-07-2008, 10:49 AM | #5 | |||
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Magnate
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If you are talking about SS there is a 2 year waiting list for Medicare. Bill had to wait 2 years and I believe it's just standard. At least it's that way when a person becomes disabled and goes on SS.
Ada |
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02-07-2008, 11:35 AM | #6 | |||
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Junior Member
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Hi Ada,
Yes ma'am that 2 year waiting period is the part of the system that really gets to me, what if people don't have any other insurance coverage and can't afford to get any. Would Medicaid step into play? I am not one of the many who are faced with that issue, but I would have thought that once you "Qualified" as being "disabled" (other than the common Renal Failure, etc.) they would know medical expenses would follow. Guess it's just one of my pep-peeves of the system. Love, Peace & Blessings, Marla |
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