What is midrin? Is it a RX?

Just to let you all know that when I last heard from Terry, she told me that her son, Jesse had undergone the Intense PT Program and that his RSD was now in remission. She said he still had a little pain but it was usually only about a 2 and he can now go to school full-time and do all the things that he wants to with his friends!!

I just thought i'd let you all know and keep you all updated as it's nice to hear such good stories and gives us all hope!! I hope you're all OK!

midrin was a prescription medication used for migrane. I do get minor regular migrane now and then now... and last time I wanted a script of this, it has been taken off the market, because there are newer, "better" options now. Not for me - have not found anything that works as well.

Although, now that I take topamax for the RSD, I have very few migrane type headaches.

The RSD has moved up my neck, into my face and up my scalp, though, and I have had a constant low, thud headache for a year that nothing has relieved.

Ahh the intesrting Dr.S
 

His program is a ray of hope for most but for some of us he is a joke completely. I have been through his program 3 times in my life the first 2 worked but the last failed completely. He has an ego to large for his head and won't except his program can fail and will blame it on anything and everything he can. In my view his program can only be for those kids in beginning stages of RSD/RND or if its situated to one spot externally. Internal RSD/RND destroys his program cause his program can only deal with external. I used to think he was a good doctor the first 2 times i was there but than i woke up to the fact that hes a joke. I am currently on the pathway for ketamine in april and am hoping this works beyond all else. In my opinion the RSD(RND) patients need a real RSD doctor that has actually experienced this disease cause its unlike any other.

A Christmas Gift
 

My son was very ill for four and a half years with extreme pain all over his body. Over 50 specialist could not diagnose the cause. For pain management the doctors recommended a Morhpine pump implant which was done this spring. He walked with the aid of a walker in the house and needed a wheelchair to go places. He missed about a year worth of school.
The Chop Diagnostic Center told us he RND and that Dr. Sherry could help him. He went in a month before Christmas in a wheelchair and came out Christmas Eve walking on his own with no Morphine. In four weeks Dr. Sherry and his staff of miracle workers did the impossible.
Christmas day my son went for a run for an hour, yesterday we worked out together, and today he is at the driving range hitting golf balls 250 yards. My son now has a life! In a week or so the Morphine pump will be removed.
For those who are sceptics and have there doubts, keep it to yourselves. I have gotten to know Dr. Sherry and he is not only a true proffesional but he has a heart of gold. It is possible you don't have the correct diagnosis.
Thank You Dr. Sherry and staff at CHOP!!

Are people still posting on this thread?
 

Hi, i'm new to this group. I've signed up as my sister-in-law's, eldest daughter has crps. I just wanted to check that people are still reading/posting to this thread as I'd like to recommend it to her. Thanks in advance for your help x

Hello Julie and welcome to NeuroTalk. The fact that this is an old thread really doesn't matter because by posting to it yourself, you've brought it back to the front page.

Our RSD forum is an active one so I am sure you'll get the support that you seek for your sister. Please feel free to ask for any information that you need.

Thanks for getting back to me. I'll recommend this forum to my sister in law once she gets settled into her new house :)

My daughter (8) went to Children's Hospital in Minneapolis, MN. They were SO good with her. She had a "fresh" case (about 2 months); when I first called they told me their waiting list was months long for their pain program, but when I explained what the probable diagnosis was (being that I had a history of RSD myself), they got her in within DAYS. They were open to medication, although my daugther wasn't (though she did use the patches on her foot). They had a PT program that worked with her (made everything a "game" to appeal to the kids), as well as psychotherapy--they really worked as a team to come at it from all angles. They even had social workers willing to advocate for her with school modifications. I just can't say enough good things about her treatment there. No egos....just a team of people trying their best to help give kids a quality of life. LOVED it! She recovered quickly; I don't know the program statistics but I think they have pretty good success with kids. Granted, my daugther only had this for a couple of months before treatment started so it was probably much easier to treat. But I do know that this team would go above and beyond to help kids get better in whatever way they can, and they are there to support the families every step of the way. :) Really, really, really loved it there.