Hello,

My 12 year old son has been diagnosed with RND reflex neurovascular dystrophy in his stomach. He is currently on the waiting list at Children's Hospital in Philadelphia for an intensive physical therapy program headed by Dr. David Sherry. He gave us this video to watch - it is wonderful - you actually get to witness a girl who couldn't walk or put weight on her foot recover - it is truly amazing and uplifting. I feel so fortunate to have my son seeing this man - it has given us some hope - finally - I thought it might be helpful to others!

Here is the site for the video:
http://www.childhoodrnd.org/

Terry

Hi Terry,

What wonderful news. I have read a lot about his program and his success rate--- 90% I believe
I have read the odd comment from people who do not like his methods as he encourages quite a lot of physical therapy but the proof is in the pudding and his happy patients are testament to the fact that what he does works!
Wishing you heaps of luck
Love Tayla

Thanks Tayla - I know his program is difficult, but at this point we'll try anything to give my son his life back.

Have a pain free day.

Terry

Hey,
Thanks for emailing me and my mom this link. It sounds similar to the one I am hoping to do in the UK.
Thanks for all your help Terry
Alison

Hi Ali,
I hope you get in the program - I'd like to see your running again!!

terry

Hi

Havnt posted here before but I just wanted to say that Great Ormond Street Hospital for children in the UK do a very intensive 2 week physiotherapy programme for RSD (amongst other rheumatological conditions), which sounds similiar to the one you describe.

I have been on GOSH's programme and it has helped me no end. It has a very high rate of success and I personally know lots of children who have been completely recovered after going on it. For example someone I know was once crippled with full body RSD and now they are completely cured and living a normal life, playing sports etc.

Please do pm me if you're based in the UK and want more info and want to know who you need to get a referral to etc. and I will be happy to help. I really do recommend it.

Estrella

My son was very ill for four and a half years with extreme pain all over his body. Over 50 specialist could not diagnose the cause. For pain management the doctors recommended a Morhpine pump implant which was done this spring. He walked with the aid of a walker in the house and needed a wheelchair to go places. He missed about a year worth of school.
The Chop Diagnostic Center told us he RND and that Dr. Sherry could help him. He went in a month before Christmas in a wheelchair and came out Christmas Eve walking on his own with no Morphine. In four weeks Dr. Sherry and his staff of miracle workers did the impossible.
Christmas day my son went for a run for an hour, yesterday we worked out together, and today he is at the driving range hitting golf balls 250 yards. My son now has a life! In a week or so the Morphine pump will be removed.
For those who are sceptics and have there doubts, keep it to yourselves. I have gotten to know Dr. Sherry and he is not only a true proffesional but he has a heart of gold. It is possible you don't have the correct diagnosis.
Thank You Dr. Sherry and staff at CHOP!!

Hi, i'm new to this group. I've signed up as my sister-in-law's, eldest daughter has crps. I just wanted to check that people are still reading/posting to this thread as I'd like to recommend it to her. Thanks in advance for your help x

Hello Julie and welcome to NeuroTalk. The fact that this is an old thread really doesn't matter because by posting to it yourself, you've brought it back to the front page.

Our RSD forum is an active one so I am sure you'll get the support that you seek for your sister. Please feel free to ask for any information that you need.

Thanks for getting back to me. I'll recommend this forum to my sister in law once she gets settled into her new house