NeuroTalk Support Groups - In complete denial

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - In complete denial (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/38479-complete-denial.html)

Welcome to the group. You will find a lot of support and help here.

I agree with Vicc. The sooner you can accept the diagnoses and learn about it the sooner you will be able to start tackling it with the right Drs. Anesteolgist or PM's for blocks to help put it in remission. Ask your Dr. about giving you blocks right away to see if it will put it into remission.

I was already messed up before RSD but I had trouble accepting the fact that I couldn't go back to work years after I became disabled.

I hope things work out for you and that you do get the help you need.

Ada

Quote:

Originally Posted by Vicc (Post 209993)

Hi Stephanie,

From amother post you wrote, it appears you were injured in November, and averyone will have suggestions about what you should do when an injury is that recent. I think it would help all of us if you could explain your symptoms in more detail, just about all of us divide RSD into two stages, and agree that early and aggressive treatment is essential.

Any changes in skin color are important, as is the kinds op pain, does the skin burn or sting; or hurt inside? Does cold affect your RSD? Does heat? Is there more than one degree temperature difference between your affected and contralateral (opposite) limb? Have you noticed any changes in your hair or nails?

I'm a firm believer in early and aggressive intervention, and what you tell us about your signs and symptoms will help us formulate our replies. I know it will help me figure out what to say...Vic

It is definitely the early stages of something as its only been 3 months. My hand gets hot and/or cold at random. When it's really bad, it turns a light shade of blue/purple. My hand gets hot even when my arm is cold, or even the other way around. I have had increased hair growth on my arm. And have also noticed that my nails grow so fast on that hand that I cant keep up with simple filing. My hand does sting and it does burn. Sometimes, it is so sensitive that any blanket or fabric hurts.....

Dear Stephanie,

I really hope you can find a Pain Management team which will initiate treatment sooner rather than later.
Your symptoms sound as though they could really benefit from a Stellate Ganglion Block or a series of them.
You are at a perfect stage to really get great results and even a cure.
There is a program called Graded Motor Imagery and Mirror Imagery that is being done by some physiotherapists who have a special interest in RSD, this stops the brain remembering the pain and helps to keep from getting atrophy of your arm.
I wish you lots of luck and early intervention.
Love Tayla:hug::hug:

Yay and yipee for the early diagnosis!! This does significantly improve your chances of healing. Hoping with you for full recovery!

Hello Kitty
Welcome to NT
I would like to sugest that you start taking some antioxadents right away, grape seed extract (GSE) or Vitimin C, and alot of antioxadent food and drinks.
They have recently found in clinical trials that Vitimin C can stop CRPS from happening in alot of cases after a break. It may help you hugely being so early diagnosed and it can't hurt to try.

hugs
Sandra

(talk to your doctor about it)

I've had good effect with ghinko biloba but it's said this stuff is pretty strong.

I also try not to make too many changes at once so I can tell which is causing what.

Denial.. shoot.. ya! LOL

Hi ya Stephanie!
Best believe your "boots' I was in denial. First of all, I DID NOT KNOW WHAT RSD was until I did much research and then found this wonderful board, no.. it is not advice to take at "heart".... only a Doc. can give ya the right meds, advice concerning blocks, physical therapy etc. hang in there, read as much as you can get you hands on!! Love, ~Desi

Quote:

Originally Posted by kittygato (Post 209861)

Did anyone else have issues with accepting the RSD diagnosis? I have heard it from two doctors and yet, I refuse to accept it. Did anyone else experience this same thing?:confused: