NeuroTalk Support Groups - My "Feelings" are changing....Anyone with RSD in the hands/arms

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - My "Feelings" are changing....Anyone with RSD in the hands/arms (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/3881-feelings-changing-rsd-hands-arms.html)

Quote:

Originally Posted by himomdp (Post 28527)

You didn't mention current treatment? Are you receiving SGB's now for the pain? Stellate Gang. Blocks are given for upper extremity separately. Or epidurals are given to hit both right and left arms at the same time.

I'm not getting any blocks or epidurals at all. Only pain management. It's too late for blocks for me. I'm sympathetically independent now :(

Thanks for all the advice ladies and gents. As it is TODAY, my thumb is completely numb, but in a really weird way. If I do happen to touch it on something, it does have sensation - and NOT a nice one, either! Shoots pain thru it like you just bit down on aluminum foil! Not sure what this is all about. When it's just sitting there, or I touch it with my finger pad, it's numb. But touch it with anything slightly rough and ZIPPPPP!!!!!!!!!! There I go! Yelling is pain.

Time to desensitize to that type of sensation now I suppose. Sigh....things are always a-changin' I guess...

Hugs
LisaM

hi Lisa,

Well`I have very similar zaps and yows in my right wrist hand/wrist/arm, worse in my hand; this isn't my RSD arm, that's the left one. I was diagnosed in the Spring with Spinal Stenosis (pinched spinal cord) and Cervical Spondylosis (arthritic growths on C4-C6, so pinched nerves too) which is worse on my right side (I'm right handed, think it's always worse on whichever side you favour). They found it using MRI.

Your description of numbness combined with extreme sensitivity of the electrical zappy kind is absolutely identical to me, yes, it's so strange, plus the pressing which produces kind of painful electric shocks.

They haven't said what they think the cause is exactly, (RSD, RSI, SS or CS) but it's not the same as the RSD arm...

I've got a doc appt next week, I'll let you know if they come up with anything :)

Just wanted to throw in my $0.2 worth!
all the best

It is interesting
My PM doc claims that I am now sympathetically independent yet I still get some relief from blocks -better on my lower extremities which are newer to the fun and games.
Have you tried one lately?

That is what is so confusing about this disease.

Again like with everything what works for one does nothing for another

I remember reading an article on the other site .Perhaps someone can google it.I don't remeber which publication it came from .
It stated that the reason no one is finding a cure for RSD is that it is not one disease.I believe the article suggested that it is 5 separate diseases.
One cure will not fit all.

If we did a survey of our symptoms , which we can do if we extrapolate the info from our threads ,we all present differently.
Now why don't the doctors get a good handle on that .I know, a rhetorical question:)

Much peace
GnP