Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-13-2008, 02:40 PM #1
ursweetheart81 ursweetheart81 is offline
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Default Just a few thoughts....

howdy,
well where do i start- yesterday was a rough one for my dear mother. She was talking about tossin her towel in. I do know that her medicine can cause her moods and hormones to get out of wack. It was difficult hearing her talk about death. Luckily i got her back on track. I do have 1 brother, and her being sick is really bothering him. I always make myself avaliable for him whenever possible.
My mother has been the person in my family to hold everyone together, and this last year its been gently laid on my shoulders. I don't mind, i just wish ppl ( family) mainly would take time out of there life to ask me how im doing. It does bother my mother that she has to soley rely on her children, but what are we here for?? I'm sure if i was to fall ill or be in her shoes she would be there for me.
Another struggle is trying to get my mother disability. What a damn chore that is because they deny you first 2-3 times you apply. I got her a good lawyer, and its just a waiting game now. And we are also trying to get her state medical ( another hassel). She goes for a hearing which i will be right by her side. I hope that i can get thru to these ppl, she needs help. Medicine costs alot, and when she has my dads medical that is shitty its difficult. You shouldnt have to make the choice ( medicine or food on your table).
Sorry for the nonsencable babble, but just have no one else to hear me out ( my cat is great just doesnt give good advice) ha ha
Christina
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Old 02-13-2008, 07:23 PM #2
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Hello,
Alot of us here are in that boat, medicine or food. But she can contact, or you as her rep, the pharmaceutical companies directly for her meds. I had to do that for 9 months during 2005. I went thru the web site needymeds.com. it worked for me. There was only one I could not get for free from the company direct, & I take it back. I did have to pay $15 for one med a month I think. That was fine with me at the time. Anyway we do what we have to do. I am almost at the point where it will be heat or food. I am so sick of scrounging anymore. That is what depresses me more than the pain any more. *sighing*

Anyway if need be, go to needymeds.com & see what you can find out there.

DebbyV
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Old 02-14-2008, 02:56 AM #3
countrymom countrymom is offline
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Debby, glad you found a way to get your meds. I don't know if you heat with a woodstove like we do but our county and a neighboring county bring free firewood to the homes of the disabled and seniors you might want to check, if that is something you are interested in. As far as food goes your Board of Supervisor is a good link. Ours has arranged for med. transportation, food ect for people in our county. Just a few ideas, for whatever it is worth. Hang in there. Marilyn
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Old 02-14-2008, 08:19 AM #4
sue k sue k is offline
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Christina, I had an awful time with disablity. Another way to ge help is go to your state reps office. They helped me so much. I didn't get denied after they got involved. Hope this helps.

Sue K
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