Bumping up the original post - to help keep on topic.

Hi all,
 

Fortunetly I don't understand any of the things you guys are saying to put in my 2 cents worth. I do want to say one thing, I do agree that Drs. are not seeing enough patients with RSDS for enough research to be done on it.

I see people on the same meds we are on that has back problems and other problems and with RSD it doesn't seem like any med we take is strong enough to keep the pain in check.

My Dr. in his almost 30 years of being a Dr. has only had about 4 patients he says with RSD. At this time, I am the only one he has, of course he is just a PCP and Sports Medicine Dr. but even pain Drs. I think get all kinds of other medical problems to deal with more so then RSD patients. There aren't many Drs. that specialize in RSD either.

I know there is some research being done but I don't believe it is enough.

Ada

Ada,

Aren't you seeing a Pain Management doctor? My doctor who is a Pain management doctor has 112 patients with CRPS/RSD on his books at the moment.
Truly, if anyone has this puzzling disease I really recommend that you see only a doctor who specialises in pain management who just has to have seen and treated many patients with RSD/CRPS.

Hope that things are settling for you Ada

Take care
Tayla:hug:

Are Toxic Oxygen Radicals Involved in the Pathogenesis of RSD?
 

Hi Sandel,


I would be interested to see if these people have any updated study as I notice the date is 1987.
I have tried to access by googling Netherlands and CRPS and can't find anything.
As always you are wonderful at finding what is out there for us to read so I am sure if there is something you will find it.
It really is quite reasonable to think there is some inflammatory process that in turn affects the behaviour of the sympathetic nervous system.
If we could only establish the trigger then we would be so much closer to finding the way to prevent it ever happening.
Cheers and thanks again for all your research
Tayla:hug:

Hi Sandra,

I took the liberty of replying to your post on this thread:
http://neurotalk.psychcentral.com/thread39478.html as you discuss the author of this article, and the subject of inflammation, in much more detail there.

Hope you don't mind...Vic

Hi again Hope,

I am working on my reply, but in order to be as thorough and accurate as possible, I had to go back and find some of the research I began collecting more than ten years ago. Back then I didn't bother with a filing system, I didn't think I would need one, but I never expected to end up with almost 2,000 abstracts and articles.

In that past I've admitted that I desperately need an editor, but I could use a secretary to clean up the mess I've made, too.

Please be patient, and thank you for the larger font. It's much easier for me to read...Vic

Hi Tayla,
 

I have been to 4 PM Drs. and they did nothing for me. My PCP sent me out to them and they were useless. I won't even give my opinion of most of them.

Your Dr. might be seeing 112 RSD patients right now but that is 112 out of how many people in this world today. The one PM Dr. that comes to mind around here takes care of people with neck problems, back problems, and RSD, Fibro. I know a lot of people that have gone to him and he's a pill pusher and knife happy. He has lost his license once and even practiced while they were lost.

I saw 3 at the U of C. One I liked but he left, the one was young and knew nothing about RSD, the 3rd was a joke. We use to have a girl on here that went to him and he messed her up to the point of a lawsuit. I can't think of her name right now. She lived in Fort Collins.

I saw one in the Springs, he handed me meds and that was it. Didn't recommend anything else. I had a hand surgeon that knew more about RSD then the PM Drs. I have seen.

My Dr. got me the blocks, the PT, the meds, and read up on the RSD to take care of me. I'm ok where I'm at. He will give me anything I want for pain also and send me out anytime I want to go but I just got sick of trying to find a decent PM Dr.

I have my Neurologist, Urologist, Gynocolgist, TOS Surgeon, Hand Surgeon and all of my other specialist I need. I am most likely in better shape today then a lot on here who have PM Drs.

I don't think that there are enough RSD people out there that makes the government push research enough.

Thanks for caring though.

Ada

Ada,
My point in telling you that my PM doctor has 112 RSD patients was to show that it is NOT an unrecognised disease---well at least here in Australia it isn't.
My doctor is only one of at least a dozen Pain Management Specialists and teams who treat RSD in my city of 2.5 Million people.
Medications form just a small part of our treatment that includes, blocks, ketamine and magnesium infusions, physiotherpy with graded motor imagery and mirror therapy, psychology, hydrotherapy and Hyperbaric oxygen therapy.
For those who do not respond to these then there are SCS and Intra-thecal pumps.The rationale is of course to diagnose early and prevent the disease ever getting this far.

Any doctor who calls himself a Pain Management specialist yet doesn't know how to treat RSD needs to be struck off the register as RSD patients account for a large percentage of patients who need help with pain.:eek:
My suggestion to anyone when you get referred to a doctor for treatment of this disease, is to not even set foot in their door until you have details of how many RSD patients they treat and how they do it---You are wasting your valuable time- and perhaps your ability to get better--just as you seem to have done Ada:(

I struggle to think that other developed countries are not as well versed in this disease as we are here in Australia. We are a small country, certainly a smart and economically sound country,but our doctors travel the world to learn about RSD/CRPS. The last conference was in Boston and the one before in Berlin, I am sure there must have been more American doctors there than those from other countries.
My doctor went to both and he came back with all the latest treatments for RSD/CRPS as well as being educated in the latest research. It is there for those doctors who want to learn.:(

I don't know what can be done to initiate interest over there---I am very, very sorry if it is as bad as it sounds from a large number of people here at NT who have shared their story.

Thinking of you
Tayla:hug:

A request again for this thread to remain on the topic and related to the original question, please

thanks to all for co-operation
Cheri

thanks