Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-24-2009, 12:17 PM #21
gitte74 gitte74 is offline
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Hi Ali12

I am a mother of a 13 year old son with RSD and he is taking 150mg Lyrica per day (prev 200mg), for how long did you have the withdrawal symptoms.

the best wishes from Gitte, Olivers mum
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Old 11-26-2009, 12:23 PM #22
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Default Lyrica withdrawal

I was prescribed 75 mg of Lyrica 3 times a day about 2 years ago. The doctor said it would help with the nerve pain I sometimes had with spinal stenosis and spinal arthritis. Some of the side effects I noticed were weight gain and a problem talking. Sometimes I just couldn't get the words out. It's very embarrassing. I talked to the doctor about it. She said that that symptom is usually caused when people don't take it 3 times a day, but only once or twice. She urged me to take it 3 times a day, or at the very least, not to skip the evening dose. The other night I was on the phone with my daughter and could barely talk. I decided to quit taking Lyrica yesterday. Surprise! Chills, fever, crying. At first I thought it might be the flu. But, just in case it was from stopping the medication, I took one last night and then slept well. This morning I had to take it again because of nerve pain. What's up with these withdrawal symptoms? I'm going to try to wean myself off slowly instead and will let everyone know how that goes! I'm open for suggestions, comments, etc. I feel just fine today - fever and chills are gone.
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Old 11-27-2009, 11:09 AM #23
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Originally Posted by gitte74 View Post
Hi Ali12

I am a mother of a 13 year old son with RSD and he is taking 150mg Lyrica per day (prev 200mg), for how long did you have the withdrawal symptoms.

the best wishes from Gitte, Olivers mum
Hi Gitte,

SO sorry to hear that your son also suffers from RSD at such a young age! Please know that I am here if either of you ever want to talk - I know how hard it can be dealing with this monster of an illness!

The withdrawals from the Lyrica lasted about 2 weeks. It was absolute h*ll during that time - I kept being sick, having severe panic attacks and mood swings etc. I remember how I used to hit my mum in the car whilst she was driving - that is something I would never dream of doing now and it makes me so sick knowing that I used to do that but had no control over it!

I hope your son doesn't have any problems if he decides to come off the Lyrica. I think part of my problem was that I was took off it too quickly and my body couldn't tolerate it.

Best wishes to you both!
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Old 01-23-2010, 01:14 PM #24
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Originally Posted by ali12 View Post
Hi Gitte,

SO sorry to hear that your son also suffers from RSD at such a young age! Please know that I am here if either of you ever want to talk - I know how hard it can be dealing with this monster of an illness!

The withdrawals from the Lyrica lasted about 2 weeks. It was absolute h*ll during that time - I kept being sick, having severe panic attacks and mood swings etc. I remember how I used to hit my mum in the car whilst she was driving - that is something I would never dream of doing now and it makes me so sick knowing that I used to do that but had no control over it!

I hope your son doesn't have any problems if he decides to come off the Lyrica. I think part of my problem was that I was took off it too quickly and my body couldn't tolerate it.

Best wishes to you both!
Hi Ali, are you still off the Lyrica? How did you quit taking it?

Edgar
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Old 11-01-2010, 04:15 AM #25
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Default Reply to Alison RE: Lyrica

Hello,

I have never done this posting stuff but this may help you...

In Late February I severely pinched off some nerves in my neck at work and was in really BAD pain...I am an recovering alcoholic so I had to make a calculated decision with my sponsor to start the strong pain management routine including the usage of Norco and,eventually, after about (1) month, Lyrica. I eventually got up to Mg each evening (leading up to what the "then" doctor I had would be Mg mid- day).

To make this story short, after 2-3 months of treatment for my injury, the Lyrica was making me so sleepy and groggy I wanted to stop. One day I fell asleep early on the couch and missed my nightly dose...The next day, while at work I was in light to moderate withdrawal including sweats / light shakes, coupled with EXTREME energy loss. I made it through the day and collapsed on the couch, thinking I would get up shortly, and fell asleep...I woke-up at 5:00 and was VERY nauseated and could not catch my breath...I had a acute panic attack! I remembered / knew I didn't take the Lyrica so I took it and about 30 minutes later I slept.

That was about 4 weeks ago- I am ALMOST done with this stuff! (Oh thank GOD-it.Has.Been.a.struggle!) Although it is not narcotic and you don't "feel" it directly, it is VERY strong, and for me, is very uncomfortable to stop! Lyrica has also apparently made me DEEPLY depressed...

Anything else, Just ask

Greg
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Old 11-01-2010, 03:21 PM #26
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Originally Posted by ali12 View Post
Hi - it's Alison here,
I was just wondering if anyone experienced withdrawal symptoms whilst coming off Lyrica.

Most of you will probably be aware that our chemist prescribed the wrong dosage of Lyrica, they gave my mom 200mg tablets instead of 75mg tablets, so I was unable to take the tablets for just over 4 days.

When I wasn't taking the Lyrica, I had horrible withdrawal symptoms, I had panic attacks all the time, I shouted at my mom, was sick, couldn't stop crying, couldn't breathe properly, was even more depressed than I normally am etc etc.

I have started taking the Lyrica again and I am fine now.

As anyone else experienced the same symptoms whilst coming off Lyrica??
Thanks for listening
Alison
Well hi Alison, I just got the script today for Lyrica kinda scared to take it does it help you? There r some really bad side affects but thry all have side affects.. Sorry I can't help you take care .....
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Old 11-26-2010, 07:09 AM #27
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Default Lyrica withdrawal effet - orgasm

Hi,

As you know with Lyrica orgasm are difficult to achieve, in some cases I used to push myself for hours to attain climax.

I had been taking lyrica for a year and i stopped 2 weeks ago. I am a 33 yrs old male.

Problem: since i stopped taking lyrica, i started feeling some of the withdawel side effects such as: dizziness, drouziness, anxiaety, trouble breathing. ESPECIALLY AFTER HAVING AN ORGASM. (if i do not have an orgasm for a while all withdrawal effects cool down)

shall i worry?

this is very annoying and i am seeking help!
thanks,
sam
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Old 01-09-2011, 09:03 PM #28
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Unhappy crying all the time

Quote:
Originally Posted by ali12 View Post
Hi - it's Alison here,
I was just wondering if anyone experienced withdrawal symptoms whilst coming off Lyrica.

Most of you will probably be aware that our chemist prescribed the wrong dosage of Lyrica, they gave my mom 200mg tablets instead of 75mg tablets, so I was unable to take the tablets for just over 4 days.

When I wasn't taking the Lyrica, I had horrible withdrawal symptoms, I had panic attacks all the time, I shouted at my mom, was sick, couldn't stop crying, couldn't breathe properly, was even more depressed than I normally am etc etc.

I have started taking the Lyrica again and I am fine now.

As anyone else experienced the same symptoms whilst coming off Lyrica??
Thanks for listening
Alison



Hi Alison,
I too am coming off Lyrica, (300MG per day) and yes I am crying all the time, irritable, sad, very depressed and generally just miserable. So you are not alone! Let us be strong and we will get through this. My Dr. has switched my medication to something called Savella....which I hope has a better outcome for myself and my pain and depression.
Good luck to you!

Vicki
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Old 01-18-2011, 01:06 AM #29
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Quote:
Originally Posted by ali12 View Post
Hi - it's Alison here,
I was just wondering if anyone experienced withdrawal symptoms whilst coming off Lyrica.

Most of you will probably be aware that our chemist prescribed the wrong dosage of Lyrica, they gave my mom 200mg tablets instead of 75mg tablets, so I was unable to take the tablets for just over 4 days.

When I wasn't taking the Lyrica, I had horrible withdrawal symptoms, I had panic attacks all the time, I shouted at my mom, was sick, couldn't stop crying, couldn't breathe properly, was even more depressed than I normally am etc etc.

I have started taking the Lyrica again and I am fine now.

As anyone else experienced the same symptoms whilst coming off Lyrica??
Thanks for listening
Alison
I got headaches, anxiousness, and my temper was more volatile than usual.
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Old 01-18-2011, 05:01 PM #30
RNcrps2 RNcrps2 is offline
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ali12, I was weaned off very slowly(lyrica does come in 25mg- and i dropped 25mg every week until off. I didnt have any side effects but my pain/burning definately increased. I was eventually put back on it. I find it works great for RSD pain but i hate the side effects from it. best of luck. momof4
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