Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-24-2011, 09:22 AM #31
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I've been taking Lyrica for about 3 years now. I'm up to 200MG (one in the morning, and one at bedtime). I also take 90MG Cymbalta and 100MG Celebrex in the morning.

I've tried to stop taking my medicines and usually the hubby or kids notice it right away. I have days when I understand and believe the meds help some, but then other days when I get super tired of "relying" on meds to make my miserable days a bit less miserable.

I have read recently that while on the meds I am on, that the doctors really should be monitoring my levels periodically. I am going to start a list of questions/demands for my doctors, as I feel right now they just want me taking the meds, having the "recommended" surgeries/blocks. I am suppose to start P.T. again, but this time they are sending me to a therapist that specializes in RSD treatment and de-sensitivity. He mentioned a hot wax therapy as well.
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Old 02-26-2011, 07:30 PM #32
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Quote:
Originally Posted by ali12 View Post
Hi - it's Alison here,
I was just wondering if anyone experienced withdrawal symptoms whilst coming off Lyrica.

Most of you will probably be aware that our chemist prescribed the wrong dosage of Lyrica, they gave my mom 200mg tablets instead of 75mg tablets, so I was unable to take the tablets for just over 4 days.

When I wasn't taking the Lyrica, I had horrible withdrawal symptoms, I had panic attacks all the time, I shouted at my mom, was sick, couldn't stop crying, couldn't breathe properly, was even more depressed than I normally am etc etc.

I have started taking the Lyrica again and I am fine now.

As anyone else experienced the same symptoms whilst coming off Lyrica??
Thanks for listening
Alison
It seems that I too get very argumentative when I miss or delay a dose. I normally take 300 mgs at 9:00 am, 150 mgs at 3:00 pm and 150 mgs at 9:00 pm. I just thought it was me all this time.....
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Old 02-26-2011, 07:42 PM #33
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I've been taking Lyrica now for almost 4 years. I'm up to 600 mgs a day now. 300 mgs at 9:00 am, 150 mg at 3:00 pm and 150 mgs at 9:00 pm. If I miss or delay a dose I too get very argumentative. I just always thought it was me...
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Old 08-14-2011, 12:31 PM #34
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Default Lyric withdrawal

I had severe nerve damage of my legs secondary to compartment syndrome. Neurotin was prescribed but was ineffective. I subsequently began taking Lyrica with great results. Though quite expensive, the effectiveness of Lyrica was undeniable. I eventually ramped up to 300mg, twice daily. The relief was essential during recovery. The side effects have been mostly minimal, with some pleasant effects, early on. But, when attempting to wean off, the side effects were horrible. Anxiety, difficulty breathing, insomnia, depression, suicidal thoughts etc. At such a high dose, my brain chemistry was seriously altered. I returned to my original dose to stop the withdrawal symptoms. Miserable. I will consult my physician again for recommendations. I refuse to go on benzodiazepines because of the awful withdrawal of those drugs. I believe a very slow ramp down in dosage and a to be expected period of discomfort.
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Old 08-15-2011, 09:29 PM #35
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I hope there's no withdrawl since I've been on Lyrica for 3 1/2 years now and 1/2 year of Neurontin before that.
I'm up to 600 mgs. a day and will be on Lyrica from now on. I do notice more pain when I miss a dose but that's to be expected. My neurologist also has prescribed anti-anxiety meds and narcotics but I'm avoiding those. Hopefully the Lyrica will suffice....

Hope for better days, Jimbo
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Old 09-30-2011, 03:52 AM #36
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Default Growing Pains??

Quote:
Originally Posted by Debby View Post
Hey Vic,
Thanks for replying. I take a low dose as I said of Lyrica 3 X's a day but I take 900 mgs of Neurontin 4 X's a day. Before I ever got RSD I had Fibromyalgia & I took an over the counter type of GABA(pentin). I had nooooo idea that it worked on never pain. I was just told it might help the Fibro pain. And to be honest I do think it did. I can't for the life of me remember how much of it I took or from what company I got the GABA from. I ordered it over the phone at first, then from the computer. I will have to try to see if I can find that company. I have traded up in Windows computers since then tho & have no idea where the bookmark is at anymore.

Before Lyrica came to the public, I would take a very very low dose of Gabatril. Now talk about affecting my brain!?!? I would go almost comatose on it. Jack would ask me what was wrong & my answer would be, "I am fine & I love you." over & over he said I would say this to him, then lay down & go back to sleep. This would be on a low dose of Gabatril. That stuff was NASTY & I would only take it when the burning pain reached such high proportions that I would cry & contemplate suicide. I had to take less than what the doctor even prescribed for me to be able to function while taking it. I have never had any problems taking Neurontin at any dose, nor any problems this way taking Lyrica. I was on a higher dose of Lyrica, but I could not stay awake at all. Also the weight gain on it was AWFUL, up to 25lbs I gained & have only lost about 10 of it & that has taken me a year.

The doctor & I both tried to wean me off of Neurontin when I started taking Lyrica, but the burning pain came back like a screaming banshee. It is somewhat like you say, what works is what counts as far as being an adult goes huh? *L* I have fought pain of one kind or another my whole damn life. Starting with what the doctor called 'growing pains' in my legs as a child to RSD pain. Pain from mild to as severe/acute as it can get. So now that I am older & I have a great pain doctor I am NOT going to go around in horrible pain anymore if I can help it. Tolerable pain I will & do deal with, but not horrible. Not anymore.

I agree, what is prescribed for children & what is prescibed for adults should be done very carefully. And monitored very carefully. How it affects adults & children can be very very different. And I know children should not be allowed to suffer from pain either, but pain control for them has to be approached differently. I think that one program then have for children with RSD is great. It retrains their brain pathways & I think for them it would work way better than for an adult. But I do want to order the book, "The Brain That Changes Itself" & see if I can do this for myself. My PM Doc thinks that I would be a good candidate for trying this technique. Anyway getting off the subject.

Anyway, again, take care & I do agree with what you are saying here.

DebbyV
ps I hope I made some kind of sense...............
[/COLOR][/COLOR]
I was wondering about your "growing pains" you experienced as a child. How long did that go on? How bad was the pain? I ask because I also experienced "growing pains" in my legs that started from about the time I was 10 until I was 16 or so. I was relatively pain-free for about 8 years but have had undiagnosed "nerve" pain in my abdomen and back for the last several years. I hate to pry...but it would be interesting to know of your experience and if it is similar to my own.
btw, what does RSD stand for?

Thanks!
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Old 09-17-2012, 12:03 PM #37
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Frown Lyrica withdrawals

I was wondering if anyone has had similar experiences when they have decreased then stopped taking Lyrica?:
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Old 01-01-2013, 06:14 PM #38
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Default Lyrica withdrawl - minor seizures?

I have been talking Lyrica PRN for glossopharyngeal neuralgia. The attacks are very irregular, sometimes weeks between, sometimes only a day. Acupuncture helps, gabapentin/lidocaine/ketoprofen cream helps, but when it gets really bad only the Lyrica seems to stop the pain. It usually takes 200-300 mg. I don't like the side effects - foggy thinking, woozy head, very sleepy.

About 20 hours after a 200 mg dose I had a trembling fit for about 45 seconds, then another for about 20 seconds a half hour later.

I had to take another 200 mg this morning (Happy freakin' New Year, eh?) at about 3:30 am. Slept until about 4 this afternoon. Worried about a seizure while I sleep tonight.

Any thought?
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