Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 02-20-2008, 04:03 PM #1
Sandel's Avatar
Sandel Sandel is offline
Member
 
Join Date: Oct 2006
Location: Western Canada
Posts: 844
15 yr Member
Sandel Sandel is offline
Member
Sandel's Avatar
 
Join Date: Oct 2006
Location: Western Canada
Posts: 844
15 yr Member
Default the first chronic pain news report (good) series

video news story, CBS news story aired feb 19 08.
1st in a series of shows to air on chronic pain.

http://www.cbsnews.com/sections/i_vi...ml?id=3849958n

Wild.. this looks like a very promising treatment!
Sandel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jomar (02-22-2008)

advertisement
Old 02-20-2008, 04:50 PM #2
LMJunior LMJunior is offline
Junior Member
 
Join Date: Jan 2007
Location: New Jersey
Posts: 71
15 yr Member
LMJunior LMJunior is offline
Junior Member
 
Join Date: Jan 2007
Location: New Jersey
Posts: 71
15 yr Member
Smile Hi Sandel

Thank you for sharing this great piece of information. Take Care

Laraine
LMJunior is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sandel (02-20-2008)
Old 02-22-2008, 12:06 PM #3
Goodn'Plenty Goodn'Plenty is offline
Member
 
Join Date: Sep 2006
Posts: 147
15 yr Member
Goodn'Plenty Goodn'Plenty is offline
Member
 
Join Date: Sep 2006
Posts: 147
15 yr Member
Default

URGENT URGENT URGENT

Did anyone notice that they never EVER ever mention RSD or CRPS in the story?????.
The officer is surely suffering from this -OUR DISEASE and not one mention of it, or that this study is about RSD and/or that this treatment has implications for RSD treatment.
The piece only mentions possible care for fibromyalgia and spinal chord injuries when their case study is clearly an RSD sufferer- bone crushing pain - severe sun burn - hello??????.
FOR SHAME on CBS -although they do mirror the general publics lack of knowledge about the disease itself, hence the prevalence and severity of the condition amongst the general population.
It is up to us to change that perception !!!!!!!
I think a flood of emails to CBS requesting a clarification on this matter is in order.


Peace

GnP
Goodn'Plenty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sandel (02-22-2008), tayla4me (02-22-2008)
Old 02-22-2008, 10:33 PM #4
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default Cbs

I met that man in Manhattan at last years RSD walk- He was very nice and definitely has RSD. I too was suprised they never mention RSD. I called to participate in that study but they are only taking people with RSD in one limb. So we continue to suffer....I am glad it is helping him a bit!
debbiehub is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sandel (02-23-2008)
Old 02-22-2008, 10:43 PM #5
Teresa112757 Teresa112757 is offline
Junior Member
 
Join Date: Feb 2007
Posts: 42
15 yr Member
Teresa112757 Teresa112757 is offline
Junior Member
 
Join Date: Feb 2007
Posts: 42
15 yr Member
Default

Quote:
Originally Posted by debbiehub View Post
I met that man in Manhattan at last years RSD walk- He was very nice and definitely has RSD. I too was suprised they never mention RSD. I called to participate in that study but they are only taking people with RSD in one limb. So we continue to suffer....I am glad it is helping him a bit!

My husband consulted with Dr. Cruciani in November regarding the treatment. He said that they were going to start offering the treatment outside of the study sometime in December. My husband is considering trying it. Dr. Cruciani volunteered that he had tried it so he would know what it is like. I have no idea what the cost would be or if insurance would pay for it, but anyone interested should call again.
Teresa112757 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sandel (02-23-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
CBS Evening News with Katie Couric Chronic Pain Segment Sandel Reflex Sympathetic Dystrophy (RSD and CRPS) 2 02-19-2008 08:15 PM
NY Times 3-Part Series on Chronic Pain Stardust Thoracic Outlet Syndrome 1 11-13-2007 10:00 PM
great chronic pain link...news story gibbrn Thoracic Outlet Syndrome 1 09-24-2007 10:07 PM
GOOD NEWS from IME report!!! beth Thoracic Outlet Syndrome 8 06-15-2007 10:24 PM
Gene Variation affects pain sensitivity and risk of chronic pain - NIH press release fmichael Chronic Pain 0 10-26-2006 03:35 PM


All times are GMT -5. The time now is 09:59 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.