FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
02-20-2008, 04:03 PM | #1 | |||
|
||||
Member
|
video news story, CBS news story aired feb 19 08.
1st in a series of shows to air on chronic pain. http://www.cbsnews.com/sections/i_vi...ml?id=3849958n Wild.. this looks like a very promising treatment! |
|||
Reply With Quote |
"Thanks for this!" says: | Jomar (02-22-2008) |
02-20-2008, 04:50 PM | #2 | ||
|
|||
Junior Member
|
Thank you for sharing this great piece of information. Take Care
Laraine |
||
Reply With Quote |
"Thanks for this!" says: | Sandel (02-20-2008) |
02-22-2008, 12:06 PM | #3 | ||
|
|||
Member
|
URGENT URGENT URGENT
Did anyone notice that they never EVER ever mention RSD or CRPS in the story?????. The officer is surely suffering from this -OUR DISEASE and not one mention of it, or that this study is about RSD and/or that this treatment has implications for RSD treatment. The piece only mentions possible care for fibromyalgia and spinal chord injuries when their case study is clearly an RSD sufferer- bone crushing pain - severe sun burn - hello??????. FOR SHAME on CBS -although they do mirror the general publics lack of knowledge about the disease itself, hence the prevalence and severity of the condition amongst the general population. It is up to us to change that perception !!!!!!! I think a flood of emails to CBS requesting a clarification on this matter is in order. Peace GnP |
||
Reply With Quote |
02-22-2008, 10:33 PM | #4 | ||
|
|||
Member
|
I met that man in Manhattan at last years RSD walk- He was very nice and definitely has RSD. I too was suprised they never mention RSD. I called to participate in that study but they are only taking people with RSD in one limb. So we continue to suffer....I am glad it is helping him a bit!
|
||
Reply With Quote |
"Thanks for this!" says: | Sandel (02-23-2008) |
02-22-2008, 10:43 PM | #5 | ||
|
|||
Junior Member
|
Quote:
My husband consulted with Dr. Cruciani in November regarding the treatment. He said that they were going to start offering the treatment outside of the study sometime in December. My husband is considering trying it. Dr. Cruciani volunteered that he had tried it so he would know what it is like. I have no idea what the cost would be or if insurance would pay for it, but anyone interested should call again. |
||
Reply With Quote |
"Thanks for this!" says: | Sandel (02-23-2008) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
CBS Evening News with Katie Couric Chronic Pain Segment | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
NY Times 3-Part Series on Chronic Pain | Thoracic Outlet Syndrome | |||
great chronic pain link...news story | Thoracic Outlet Syndrome | |||
GOOD NEWS from IME report!!! | Thoracic Outlet Syndrome | |||
Gene Variation affects pain sensitivity and risk of chronic pain - NIH press release | Chronic Pain |