[Stacie]

So thank you 2 those that responded to me i have RSD in my left leg i have had it for a year and a half now. I hate this crap i cant believe

so many people go thru this especially the younger people than me. i want to start off saying that if my first dr had it his way i woodnt

have a left leg anymore. so i have gone to a pain clinic for a year and a half and they have

done so many different things they finally stuck on LSB's which only work for 2-6 hours as far as pain relief goes and thats not all the pain

go figure. so i went thru what they call a trail for a neurostimulator to block the pain signal from getting to my brain and that worked for

bout 50% pain relief so i am going forward with that i actually have my surgery tomorrow 3/7. not to mention that they can never find a

place for an IV so i have to get stabbed with the needle at least 4 times usually so that just adds to it all. i am in a wheelchair cuz i cant

walk and wear a full leg brace. i take lyrica and morphine for my RSD and they both help minimally. so i guess if u have any questions for

me plz feel free i love to talk and i appreciate talkin to all of you. thanks a million for talkin to me *~STACIE~*

[dreambeliever128]

I am sorry that the blocks didn't work for you. They work for some and not others unfortunete. I would ask the Anesteologist and Surgeon for a block before you have this surgery though. That may keep it from spreading. It worked for me for 4 surgeries I had with blocks.

What worked for me was PT but not aggressive PT. Mostly massages, myofascial release, stretching my fingers and hands, heat. I had one PT that wanted to ride an exercise bike and use therabands and I refused.

I also use Lidoderm patches. You can wear them for 12 hours on and 12 off and they are prescription and work pretty good. You can wear up to 3 of them at a time.

I'm on Methadone for pain and a lot of people have tried it and didn't like it. My dosage is very low so it has very few side effects but works good for me. There will be others come on with a list of meds they have tried and haven't.
There are antidepressants, pain, and meds for spasms and they are trying a lot of new things these days.

The Lyrica is pretty new. I tried it and I couldn't do it due to the weight gain and it was just making me nuts and keeping me awake at night. To some the weight gain is ok but I can't afford to gain due to other health problems.

I am glad you found the group. I am sorry too that the RSD brought you here. It is nice here and there are some good people so just hang in and others will come on to help you.

Ada

[Stacie]

so i do lidoderm patches as well the weight gain was hard o deal with from the lyrica i hate the way i look now but its look like this or i wood b dead if i hadnt stayed on it. i will b having a block b4 the surgery i do everytime i have had 6 surgeries since the dx and i have ahd one everytime to prevent the spread. thank you so much for all your words truly appreciate it *~STACIE~*

[dreambeliever128]

It sounds like you are doing things right yourself. I hope soon you can get well enough with that leg that you can walk again on it or at least with a cane.

Ada

[gigglebabe]

Good Mornin Stacie,

Good luck with the stimulator. You will have to keep us posted on how you do with that. I've had the trial as well. Though I didn't get as much relief as I wanted, and I had a hard time getting the lead put in. So I opted not to have it put inside me. I will keep you in thoughts and prayers thru your surgery.

Hugs
Debbie

[vanityfaire]

Good luck with the surgery Stacie. It looks like you have had it. I hope you are doing fine and that you get great relief. It would be cool to hear you are walking again and pain free would be nice as well. Let us know how you are.