Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-26-2008, 06:11 PM #1
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Default Do meds give a person a false sense of security?

I have been thinking about this since all of this thing with Vicc.

Vicc has been with the group since we all came from BT over to NT. Very few of the oldies are left due to the things that seem to keep going on here. I see a constant of fighting and arguing here.

My question is, do the meds give people a false sense of security to the point that they say what they want and feel like they can take on the world. Do they make a person feel like they don't care what they say? Do they make people speak their minds whether they are right or wrong?

I am not much for meds and neither is my Dr. He works his *** off on keeping me walking and getting around without me carrying a list of meds a mile long for when I see the next Dr. or end up in the hospital for something.

Again, I just felt like this was a question that people need to think about and I'd like peoples thoughts on it.

This is not to start an argument, I am just wondering if this might be the case in most instances.

I do know that when we take our meds we are in less pain so we think we can do things we couldn't do before such as run a marathon, walk a mile, climb a hundred stairs, then when they wear off we think why did we think we could do that. Again is this the case with talking too?

Ada
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Old 02-26-2008, 06:32 PM #2
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I am not sure that I am following what you are trying to ask. I know what you mean about the discussions turning into out & out arguements.

But who is it you are referring to as having this false sense of security? Vicc or others?

As I see it happening....someone may ask a question. One (A) answers it as to how they see things, someone else (B) doesn't like the other ones (A) answer & starts throwing crap out there & WHAM BAM an all out FIGHT is on with written words. One (A) has their back up research & the other(B) has nothing, but inciting words & that is all it takes. So which one has the false sense of security & what exactly do you mean by that phrase?

Did I make any sense??

DebbyV
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Old 02-26-2008, 06:41 PM #3
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side effects of meds?

like the ones that were for parkinson's and now rsl? i'll check my spelling..but mirepex and requip. they have side effects that control impulses. like gambling and over spending. many of the pd members have posted about that.

depends on the meds you are talking about ada. or the dosages.

it is a good question.

does taking high amounts of pain meds effect you emotionally? effect your actions?

that would probably be best answered person. i don't take rx pain meds. (no insrance and i don't tolerate them well any way ) i'm not sure what all the side efects are. i'd have to look them up.

i am a chronic pain sufferer. since the an accident at age 12. does pain effect my mood. darn tootin' it does. i can handle very high pain. but when it goes on and on for weeks or months with no break...yes..it effects me. i'm normally a very postitive upbeat person. at those times. no.
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Old 02-26-2008, 07:03 PM #4
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Default Hi Debby,

Sorry I didn't explain it better. No I didn't mean to lean this toward Vicc at all.

I know what he takes. He's not on that much in my book.

I am thinking anyone. I know I was on one years ago that use to make me feel like I could take on anybody. I remember even taking it before I went to see my Dr. thinking it made me able to say what I thought better. It finally struck me that I didn't need it to talk to him the way I wanted to. He also taught me how to talk to other Drs. so that helped.

I guess I mean in general.

Sorry Debby if I said it wrong.

Ada
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Old 02-26-2008, 07:10 PM #5
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Default Hi Curious,

Thanks for the help on that.

You know, as I told Debby, I remember one that I took that made me feel like I could take on anyone. I can't remember it for the life of me which one.

You said it better then me.

This just really interested me though. I have thought about this for sometime.

It could be that it's just the personality of a person but I was wondering if this was an added plus to some that aren't as strong about what they want to say or maybe it just adds on to the pot.

Thanks again,
Ada
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Old 02-26-2008, 07:36 PM #6
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For me personally, when I feel better, regardless of whether it's from breakthrough pain meds, or my spinal cord stim hitting exactly the right spot, or a wonderful meditation session, I'm happier and when I am happier I am more confident. But I don't think that my meds have anything to do with that really. In fact, when I'm on more meds I feel less confident because I know that my brain's a little fuzzy.

I think that these things are due to the relative anonymity that people have here. People say things that they wouldn't necessarily say to someone's face.

Also with the Vicc thing, I would just like to say that regardless of how long someone has been here, they still need to be kind and respectful of everyone here- newbie or not. I have a degree in neuroscience, and I have tried to share research and theories with Vicc. At first he was interested in me because of my scientific field, but the minute that he decided that I differed in opinion from him, he became very rude and hostile to me.This may be blunt, but some of the things that he was promoting were wrong, according to the knowledge that I have gained over 4 years of intensive study. I don't think that it does anyone a favor to disemminate information that is outdated and potentially dangerous. Vicc kept advocating the topical use of DMSO- DMSO is a very dangerous and caustic chemical. It's a known mutagen- it causes mutations in DNA. It is an industrial solvent that is used to strip paint.

By all means, if you think that anti-oxidants will help your pain, take anti oxidants! But to advocate potentially dangerous substances is not a good thing. To also shoot down dissenting opinions and imply that people's research is not valid because those researchers are "making things up" is not respectful at all. We're all in pain here, and we all have cranky days. But it was really off putting that Vicc seemed to think that he could say whatever he wanted to because HE wasn't feeling well and he was in pain. He said as much to me. We're all in pain, and if that were an excuse for lashing out this would be a really unpleasant place. I stopped commenting on anything because I was afraid of incurring the wrath of Vicc. No matter what I said, be it about the weather or how I was feeling, he had a way of belittling it because I don't think that his theories are correct. It made me sad, and I was turning to this forum for support, not to be attacked or called crazy.

That's just what I was feeling about this. I want to be an equal here with everyone, and not attacked for being new and "not knowing things". I hope that people can turn to me and that I can share my knowledge with others. Knowledge from personal experience and from academic experience. I just wanted to get that out because I know that I wasn't the only one that was on the receiving end of this kind of treatment.

Linnie



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Originally Posted by dreambeliever128 View Post
Sorry I didn't explain it better. No I didn't mean to lean this toward Vicc at all.

I know what he takes. He's not on that much in my book.

I am thinking anyone. I know I was on one years ago that use to make me feel like I could take on anybody. I remember even taking it before I went to see my Dr. thinking it made me able to say what I thought better. It finally struck me that I didn't need it to talk to him the way I wanted to. He also taught me how to talk to other Drs. so that helped.

I guess I mean in general.

Sorry Debby if I said it wrong.

Ada
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Old 02-26-2008, 07:38 PM #7
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Hi Ada
I have just been through a truly horrible time where a med was making my husband psychotic. Within a day of that med being withdrawn the psychosis stopped, although he is still not fully back to himself.He is suffering intense pain from a serious spinal/hip injury and I know that also adds to this.

He was imagining all kinds of things, was very angry and aggressively belligerent, reckless, intense moodswings, and a "persecution complex" etc etc and my hubby is actually a very gentle and rational person


so yes, having recently experienced this personally in our family, I do feel some meds, as well as pain, can really negatively alter a person's psyche

Cheri
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Old 02-26-2008, 07:51 PM #8
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Default Hi Chemar,

What you said about your husband brought Bill to mind. The heart Drs. put him on Noravasc 3 times and I got him back in and got him off of it. One week before he died he was right back on it. They surely got good kickbacks from it.

Bill became really like a wild person on it. He was uncontrolable. When he got off of it, he got back to his normal mild personality.

Ada
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Old 02-27-2008, 12:51 AM #9
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I used to be the most confident person you'd ever meet. Even when I was dead wrong I'd defend a position or myself to the bitter end.

Then I got RSD. The meds are irrelevant. I can still argue but I refuse to lose my temper or discuss things with those who do. Adrenalin tends to be worse than bright lights, loud noises and heavy vibrations even on my worst days.

I try to stay calm and not worry but, of course, it doesn't work all the time.
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Old 02-27-2008, 01:31 AM #10
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Hi Ada,

I've been on my fair share of meds over the almost 9 yrs. of dealing with RSD. And I can tell you, meds have been a big issue with me. One I took I could walk around a corner and fall flat on my face, another I would walk in a room and have no clue why I was in there. Another, I would snap at anyone who said even so much as hello. My kids hated me on that med. It was like omg mom...no more! I would snap at them at the drop of a pin. It didn't take anything for me to blow my top. I think meds play a tremendous part in how people might react.

Which is why we should all be very understanding of others, and if we do not agree, we should read past that thread and post only on what we do agree with. Because everyone reads things differently. No two people on this board will read a post the same way and get the same meaning from it. Just like readin a Bible. None of us get the same meaning all the time from a verse. We all have to be understanding of each other.

hugs to you
Debbie
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