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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Hey all,
It seems that my whole world has been consummed with this freaking pain! Most days lately i feel that dying is the only way to make it stop meds and meds, and shots, and doctor and people not beleiving it... I just wanna break down and call it quits... (i am not sucicidal) this is just getting so much worse... I already thought i had all i could handle and now a flare and worse pain! Oh my, i just cant do this any more! Could I get some insight on what you all are taking for meds... THat would be much apperciated.... Havent been here in awhile! SORRY! Much love and pain free days to all... ![]() ![]() ![]()
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Jacquelina . |
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#2 | ||
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Wildberry, I'm sorry you're in this place where there seems no way out. I've been there many times too and it is so hard to deal with. All you can do is try and get through the next hour, then the next hour and hope and pray it'll settle down a bit and give you a break.
![]() I'm only on a few basic meds at the moment, baclofen for muscle spasms/cramps etc and endep for the nerve pain. Then I take a variety of vitamins etc. And I take temgesics when I have flareups. They can last a few hours and take the edge off the pain... sometimes! The only thing is most of my flareups are at night, but the temgesic keeps me awake. So I may get the edge off the pain but I'm still up until 4am! ![]() I hope you can find something to help you asap so you can get your head above water again. x Kate
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RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS. |
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"Thanks for this!" says: | wildberry2277 (03-21-2008) |
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#3 | |||
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Magnate
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I heard those words many times from my mouth.
I am so sorry you are going through this. Have you tried blocks to see if those might help calm the pain? They can help for some no matter how long a person has had it. I just took a half of a 5 mg. of Methadone to calm some of my pain. It sounds like a little compared to most but it helps. If I could take a 5 all of the time it would help with my pain a lot more. My chest pain won't let me do that but it is a good pain med. Also you might want to ask about lidoderm patches. They help. You can slap 3 of them on at a time. 12 hours on and 12 off. Some people take hot baths for the pain. That didn't help me at all when I was at might worst. I can remember the 5 years it took to get my RSD calmed down. I couldn't have done it on my own though. If I hadn't had Drs. in place to help keep mine calm, I would never have had it calm. Also PT helps. Some believe in agressive, I don't. Ask your Dr. about these things to see if he might let you try the patches. Of course others will come on with a list of meds for you also. That way you will have more to choose from. I sure hope things start calming down for you soon. Ada |
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"Thanks for this!" says: | wildberry2277 (03-21-2008) |
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My husband had problems and excruciating pain for 8 years and he told the doctor he was ready to end it himself, he couldn't take anymore.
The doctor sent him to a pain specialist who immediately knew what was wrong, three meetings in "day surgery" took care of the problem and life returned to normal for him....he was in the surgery office because that's where Dr. Q was at the time...this was just a series of shots to block the nerves....this was in 2000.....he's still pain free...the shots worked for him. Each of the tree appointments took about 5 minutes and its been good ever since.
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. Ever alert to our needs, they nap nearby at a craft sale, they are with us every place we go.... . . |
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"Thanks for this!" says: | wildberry2277 (03-21-2008) |
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