Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-18-2006, 08:45 PM #1
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Unhappy Green Light to Cry!!

I am sitting here thanking God that men have to right to cry when necessary, regardless of my father's beliefs.

I've been going to my doctor's more frequently because of alot of new problems I have been having. Constant tremors 24/7, etc. Than went to 2 more doctors and today I found out officially that I have Multiple Sclerosis (MS) on top of everything else. In other words even though I have this now I still have to contend with the peripheral neuropathy and CRPS which now covers almost 80% of my body. I get home tonight and I let loose. I cried and cried. Partially out of anger and partially because I don't feel I deserve this and I'm only 43.

The pain so unbelievable, and I hate the drugs with a passion. But my doctor says I am now "Opiate Sophisticate". Which means that over the last few years I have built up a immune to most all pain medications and really get no relief from most anymore unless they are in really high doses. Sucks big time. Oh well. Tomorrow is another day. Chin Up!...

Mark
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Old 10-18-2006, 09:18 PM #2
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Hi Mark

I believe that men should be allowed to cry without being ashamed of doing so. It's a good release and when it's needed it's needed.
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Old 10-18-2006, 11:01 PM #3
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Mark: I am so sorry to hear of your diagnosis of MS. You have certainly had more than your share of troubles. We are here for you whenever you need us. Regards, Lil

PS I believe that real men cry. It is the ones who are not sure of themselves that are afraid to cry. They care too much what others think.
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Old 10-19-2006, 01:33 AM #4
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Mark, I need you to email me asap. I cannot believe this is happening to you Mark. I love you and worry about you. But all will be fine because we need you. You have been such an inspiration to me Mark. Please write to me. I LOVE YOU
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Old 10-19-2006, 02:54 AM #5
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Dear Mark,

This is indeed sombre news which would make anybody cry at the very, very least. I am really knocked back by learning of this new diagnosis and have only love and hugs to offer you.

I think, though, that while the diagnosis is shocking, in one way it's just putting a name to a collection of symptoms you've had for some time - the name doesn't change anything. In fact, now that they know the fundamental cause of the symptoms they can start to treat you properly.

I have the most profound hope that with a more informed treatment regime, you might start to feel significantly better. I know you could hardly have been feeling worse, and right now I'm sure you're feeling mentally very low. Just remember, you are a very special and important member of this community and I for one will do my utmost to be there for you, whatever you need.

So you're not alone, not by a long chalk. You take care now, remember that a tall one can hold his chin up very high...

xxx all the very best.
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Old 10-19-2006, 02:33 PM #6
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<-----hands mark a box of kleenex

real men cry. need hugs and friends.

i am so very sorry to hear of your new dx.

as artist said...you aren't alone. you have friends around the world who care.
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Old 10-19-2006, 02:45 PM #7
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Default hey chin up mark....................

i am so very sorry to hear that you have a new diagnosis to add to your pains................

it is very understandable that you are upset.......and you have all rights to cry cry and cry some more..........don't ever feel less of a man because you are able to show emotions....................IMO it shows you are a bigger man than most...............(and i don't just mean tall either..............)

big gentle hugs to you....................
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Old 10-19-2006, 10:36 PM #8
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Oh honey....do you need company? I just found my box of kleenex. As I need some company crying over this diagnosis.

But when the sun comes up tomorrow we both will be stronger. Or should I say everybody will be stronger. Debbie by then will have e-mailed you...and/or called you.

Mark, chin up as you always say. We will get through this together. You joined this support group as this is what we do. Support each other through thick and thin. So, this is what we will do. We can't take the MS away, but we will be with you, cry with you, and do alot of laughing with you.

But for now, I have used a few of these kleenex's for you, buddy.

Chin up my dear friend. We are in this for the long haul. You just keep on posting...no turning back buddy. I care for you.

With aloha,

Dana
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Old 10-19-2006, 11:08 PM #9
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Default Kleenex or no

you just gotta let them feelings go. Dont hold them inside to do more damage than they should be allowed if you dont let go. So cry them away, and know that you are more of a man for doing so. We all will be with you never letting you down, cause we need to cry also, for you, and for we. This way we all will feel better and keep some sanity.

We have the highest respect for you bro, you have always been there for us with a little hope and encouraging words. "Chin up" my friend we are all here, and standing behind you through thick and through thin.
Love ya much bro your good friend
Allen
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Old 10-20-2006, 03:10 PM #10
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Mark,
I guess by now you know, it's okay to cry.
I hope they find a successful treatment for the MS.
You'll have better luck there than with RSD.
I hope they have your pain levels controlled soon.
Hope
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