Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 08-20-2009, 11:51 PM #1
ams0310 ams0310 is offline
Junior Member
 
Join Date: Jan 2009
Posts: 33
15 yr Member
ams0310 ams0310 is offline
Junior Member
 
Join Date: Jan 2009
Posts: 33
15 yr Member
Default scs trial being put in Friday...

I am nervous and excited all in one!

I hope that all goes well, as I am sure that it will. I just pray that the surgeon doesn't sneeze or suffer from too much (or little) caffeine!

I hope that I have a better outcome that I did with the TEC.

Awna
ams0310 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (08-22-2009)

advertisement
Old 08-21-2009, 04:57 AM #2
SBOWLING SBOWLING is offline
Member
 
Join Date: Mar 2009
Location: Ohio
Posts: 310
15 yr Member
SBOWLING SBOWLING is offline
Member
 
Join Date: Mar 2009
Location: Ohio
Posts: 310
15 yr Member
Default

Hello Awna,

I wish you the best of luck. You will be sore and becareful when moving. You will have a large elastic belt that will hold everything tight until the permanent implant is done.

Don't worry about the surgeon. My motto is don't borrow trouble. Don't worry about things that you can't contorl or that may never occur. Your doctor is a professional and will conduct himself/herself as such.

I has a SCS put in 3 years ago. Besure you understand the remote. Have them go over it with you before they start to medicate you. Have a phone number to reach the SCS technician after hours.

Good luck I hope you find the relief you are looking for.

Take care,
Sherrie
SBOWLING is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (08-22-2009)
Old 08-21-2009, 08:29 AM #3
bassman bassman is offline
Member
 
Join Date: Feb 2007
Location: Milwaukee Wis
Posts: 276
15 yr Member
bassman bassman is offline
Member
 
Join Date: Feb 2007
Location: Milwaukee Wis
Posts: 276
15 yr Member
Default

Quote:
Originally Posted by SBOWLING View Post
I has a SCS put in 3 years ago. Besure you understand the remote. Have them go over it with you before they start to medicate you.
OH! How this is true. I am always slow to come out of anesthesia and it is a good thing my wife was around when they showed me the remote. I was still out of it. Learn about the device while you are still fully alert. Afterwards, they will run through it their allotted amount of time and then move on.

Years ago, I had foot surgery and got “instructions” on how use crutches while I was groggy, sick from morphine, and hooked up to an IV. It sure would have made more sense to get the crutches and instructions beforehand and maybe even able to practice while I was still well.

Mike
bassman is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (08-22-2009)
Old 08-21-2009, 10:51 AM #4
ali12's Avatar
ali12 ali12 is offline
Magnate
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
Magnate
ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Default

Hi Awna,

I wish you the best of luck with the trial SCS today and really hope you get the pain relief you need and deserve!!

I haven't tried the SCS (my doctor wont do it in anyone under the age of 16) so don't have any advice unfortunately but please know that you are in my thoughts and prayers!!

Please keep us posted when you can!

Alison
__________________
To the World you may be one person, but to one person, you may be the World.
ali12 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (08-22-2009)
Old 08-22-2009, 03:04 AM #5
hope4thebest hope4thebest is offline
Member
 
Join Date: Jan 2009
Posts: 305
15 yr Member
hope4thebest hope4thebest is offline
Member
 
Join Date: Jan 2009
Posts: 305
15 yr Member
Default

Hi Awna,
Pease keep us posted on your procedure and how you are doing!
I hope it all works out for you and you experience the relief I know you are longing for!!
Hope4thebest
hope4thebest is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (08-22-2009)
Old 08-22-2009, 12:45 PM #6
Dew58's Avatar
Dew58 Dew58 is offline
Member
 
Join Date: Jul 2008
Location: Oklahoma
Posts: 498
15 yr Member
Dew58 Dew58 is offline
Member
Dew58's Avatar
 
Join Date: Jul 2008
Location: Oklahoma
Posts: 498
15 yr Member
Teeth

Hi Awna,



I pray that the trial SCS works very well for you. A Win for One, is a WIN for ALL. Please let us know how you do on the procedure, and you can expect to have excellent support.

I am Dew, nice to meet you

Looking forward to hearing from you
__________________

.


A Positive Attitude Will Assist Me Toward An Active Life, Once Again
.

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
Dew58 is offline   Reply With QuoteReply With Quote
Old 08-23-2009, 01:12 AM #7
ams0310 ams0310 is offline
Junior Member
 
Join Date: Jan 2009
Posts: 33
15 yr Member
ams0310 ams0310 is offline
Junior Member
 
Join Date: Jan 2009
Posts: 33
15 yr Member
Default

thanks for the well wishes and support!

Everything went smooth. Of course my back is pretty sore right nowfrom everything.

Learning how to adjust the settings is just that...learning! I shock the heck out of myself at times. I can be sitting in one spot for a good hour and move my left arm to twirl my hair or something and WOW! The jolt I get down my leg is amazing!

The foot/ankle/leg pain is not gone completely but I would say it has gone from an 9/10 before the trial SCS to a 6-7/10 just within a day so far. Today I have been able to put my leg under the blankets. I haven't done that in a year at least! I can only imagine how things can improve with the perm. implant.

Any other advice would be wonderful from your experienced SCS'ers. Thanks for all of the support and words of wisdom. Ya'll are the best.

Have a great weekend.

A
ams0310 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ali12 (08-23-2009), Dew58 (08-23-2009)
Old 08-23-2009, 02:06 PM #8
ali12's Avatar
ali12 ali12 is offline
Magnate
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
Magnate
ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Heart

I'm SO glad to hear that everything went well for you Ams and that you are getting some relief already - that is great!!!!

I really hope that the temp stimulator continues to help you and that you get even more relief from the permenant should you wish to try it!!

Thinking about you and please keep us posted as to how the rest of the trial goes!!

Alison
__________________
To the World you may be one person, but to one person, you may be the World.
ali12 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (08-23-2009)
Old 08-23-2009, 03:48 PM #9
Dew58's Avatar
Dew58 Dew58 is offline
Member
 
Join Date: Jul 2008
Location: Oklahoma
Posts: 498
15 yr Member
Dew58 Dew58 is offline
Member
Dew58's Avatar
 
Join Date: Jul 2008
Location: Oklahoma
Posts: 498
15 yr Member
Heart



This is a wonderful bit of news! Thanks for sharing your progress. I hope the SCS continues to bring you relief.
Dew
__________________

.


A Positive Attitude Will Assist Me Toward An Active Life, Once Again
.

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
Dew58 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Wet Friday~ Fancylady_2006 Weight Loss & Healthy Living 5 06-29-2007 06:34 PM
I Am Going In For The Scs Trial On Friday Bronco4586 Reflex Sympathetic Dystrophy (RSD and CRPS) 17 06-16-2007 07:48 PM
CLINICAL TRIAL...Phase III Trial with Pimavanserin in Patients with PD Psychosis Stitcher Parkinson's Disease Clinical Trials 0 06-16-2007 12:23 AM
Friday it is! Alffe Weight Loss & Healthy Living 7 12-22-2006 09:12 PM


All times are GMT -5. The time now is 03:43 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.