Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-24-2007, 03:15 PM #1
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dreambeliever128 dreambeliever128 is offline
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dreambeliever128 dreambeliever128 is offline
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Join Date: Nov 2006
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Default I went to see my Immunologist today.

It's been a long, long day and it's only 2 here.

I went to see the Immunologist today and he says he believes I have lyme disease. I have thought of this before. A friend of mine has it. He moved to Alaska a few years back but I can remember he couldn't get the help he needed here.

The Immunologist gave me the name of an Oncologist in the Springs that deals with just lyme disease. Only thing is a lot of his treatments aren't covered my insurance so I don't know if I can afford him.

I also went to a consignment shop today that I love to visit and I met a girl with RSD and has the pain pump in. She showed me where they had put it in. She has had it for about 2 years and continues to work. Now though it's in her foot, she showed it to me and it was swollen and discolored. I gave her this site hopeing she will come on here. I was telling her that she could learn a lot on here about the RSD and how to deal with it.

One thing I thought was odd is that some of my bloodwork wasn't done. The lab put cancelled on it. I told them I'd go back later to get them done. He said the others turned out ok but my cell count was low.

He wants to see how I do on the CPEP machine and the allergy meds I am on in the next two weeks.

Also he thinks I am having anxiety attacks in my sleep and that's why I keep waking up and having breathing problems also. I honestly thought I had those under control.

I also picked up my New Balance Tennis shoes so I was excited about that. Now I will try and take some walks again.

Too much in one day. I am going to rest awhile before my boys come back in from swimming.

Ada
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