Hi,
It's hard and sweating makes me feel yucky.
I sleep on 2-3 layers of doubled over draw sheets and sweat through to the last draw sheet sometimes. No wonder I don't feel rested, this wakes me up several times/night !!
I have an outline of my body on my mattress, but if I bought another mattress, it would do the same thing. I glad there is no smell, which is another weird thing about it. And it evaporates so fast, I think that is why I get the chills so much. I sweat all day & all night long, hot or cold temps, makes no difference. I'm at home almost all the time day after day, but when I get up to bathe, brush teeth, that kind of activity, that brings on a sweat. Mostly it happens for no reason at all....except the REAL reason it happens.
I did some reading and it is the autonomic nervous system that is out of whack, that is what RSD does. Messes with the autonomic nervous system. And that is what controls things like our heart rate, sweating, bladder and digestive system - that may be why tummy always feels so full

daylil- Thanks so much for the idea about the shawl, I'll look into that today. I have tons of those magazines around. I don't go shopping. You're so right when you say how it HURTS putting on and taking off sweaters / jackets. Yesterday I wore both and it was hot! Long sleeves hurt when they touch my arms, hands, but I cover them with lidocaine patches. Even tho they only work slightly they protect my arms from touch. My skin tears easily now it is so thin and can't wear the patches when my skin tears

The sweats get worse for me in cold weather
And also when you said about moving the sheets and lettng in the cold air
I had gone off the only med I take that could cause sweating and it continued..but I can tell you what cuts them down a lot - Xanax. I take it around the clock. It only lasts 3-4 hrs and I take a double dose at bedtime. After 4 hours I wake up wet. Otherwise, I'm drenched all night. My husband is good about peeling off the draw sheets. I had low thyroid 5 yrs before RSD and the levels are fine, but maybe someone else could benefit from having that checked - good thought !
lnteresting about having the nerve cuts stops the sweating. That is a sure way to know if it's meds or the autonom system.
Have a dry day...and try to stay warm those of you in colder climates. If I could send some sunshine and heat your way, I would.
Hope

Hi all y'all.

I think that I am the odd man out in the thread here, as I am severely cold intolerant. I HATE FALL here in the South, as we really only have two seasons, one that is HOT, and one that is COLD. LOL. Fall starts the COLD Season. (For an example of what I am talking about...just last week before last, we were hitting temps in the upper 80's. Then Fall fell on us for real, and we are now having trouble getting out of the 50's, and waking up with frost on the ground. BRRRRRR! Too cold for me! And, way too drastic of a temp change all at once. But, such is life down here in The Land Of Cotton. LOL).

I do much better in the HOT seasons. My only troubles then come from the Humidity, but since that is something that I have to deal with all year long down here...I would rather deal with it in HOT weather than I would in COLD weather. Actually, I am very much looking forward to when I move back out West to the Warmer, DRYER climes, as I do so much better in those. Still hurt, and still have symptoms...but just do much better over all.

I also have the sweating thing that you are talking about Hope. Not quiet as bad...but for some reason I seem to sweat MORE in the colder temps? The only thing that I can figure is because of the heavier clothing? I mean, I live in soft, thick (but VERY loose) hunting socks, sweat pants, and either sweaters or shirts of varying sleeve length....with my throw constantly at hand when I am in the house. I also have a couple of ponchos that my Mom made for me that work VERY well (you might check out using those? No sleeves at all to hurt arms? And...you can stick arms out, or pull them in and cover up as needed when your temp changes? Also, very easy to get on and off, as long as you make sure that they have buttons and not just neck hole, which can be kinda hard). No smell, either....which I am VERY glad about...but don't quite understand?

I also agree with you and Flippinout about the sweat being an autonomic nervous system issue, because when I have a RF done the limbs that are affected are nice and dry for a while, until the nerves grow back together. Sometimes I even wind up with a nice dry hand or foot for a few days after I have just a plain old block done. Don't know why...but I am not complaining one bit! It does feel weird, though, to have one moist side and one dry side (when I can get my doc to do both upper and lower procedures for me during the same OR visit). I have also had sweating when I have stopped taking meds that would cause it, too. Have not noticed any increase in it when started them back? Very weird. But, that is RSD for you.

LisaM...I did want to tell you...I also have been told I am SIP too. Have been for...well...years now (I have had RSD going on 10 years...and didn't get my first blocks until about 2, 2.5 years into this mess...). I have blocks done, both for upper and lower body RSD on my right side, and DO get relief from them. You might give them a try, and see if they give you ANY kind of help, because some help...even a little...is better than none. Sometimes it is all that is needed to calm down what has been, or what will turn into a horrible flare. If you have NEVER had a block done.....I wonder why?

Anyway...I just wanted to add my hat into the ring here of folks that were not liking this weather change. I HATE it! But, then...I hate it being COLD at all, and cold to me is when it gets below 65. Damn cold is anything below 60, and freezing is...well....I don't even want to think about it! ROFL. Feel bad for my poor kids, because I cam constantly harassing them about having their coats...and PUTTING THEM ON...when I feel cold. They aren't small, little kids either, but are 17 and 19 years old. ROFL. Needless to say, I get LOTS of eye rolling, and lots of tossing jacket/coat over arm to carry, only to shut me up (not that it works, because the Point is to PUT IT ON, not to Carry It! ROFLMAO!! OMG!!!! I have turned into MY Mother!!!!!)

Oh well. I can't help it that I am Lizard Woman. I should have tried to change my name to that for this new forum, maybe. LOL. I just know that I am already day dreaming about Nice HOT sun shiney Summer days, when I can go outside and soak up the heat and try to get these bones warmed up. Since bones are only 37 years old, I am wondering what is going to happen when they are older bones....and need more warming up? Hmmmmmm. Maybe I need to move to Equador or something! ROFL!!

Hope that everyone has a WARMER (if they want it...or colder, if they prefer that..) and Drier day today, with lots less pain! Watch out for the weather changes, as there seems to be fronts zooming all across the country right now. *Sigh. Not a good thing for any of us, I think.

(((Hugs)))
Jose

Jose, I have no idea why. After my TOS surgery, the PT doc wanted to do a block, my my surgeon said in his opinion it was "too soon after surgery" and that area was too sensitive still. He said it would really be too sensitive for quite a long time. In his opinion, for "up to six months." Granted, it was probably swollen for that long, which would make it difficult to find the proper area for the needle to go in, so I woulnd't want the block done then anyway (I've heard horror stories of the needle being put into the wrong place!). After that, though, even my MD, and the pain doc, all said no. That they would do no good "at this point" and that "it's too late." I've had several doctors tell me this.

I'm just doing what I'm told...just like the rest of y'all are...going with the program...which is about all we can do. LOL!

Hugs
LisaM

Sitting here way in the middle of the Pacific Ocean, brings in a new prospective. I actually keep my A/C on all the time. Keeping the thermostate at a constant 78 degree's removing the humidity from the air. BUT...Even though I can keep a constant temperature, and our weather is mostly good, I find my internal temperature levels flucuate from hot to ice cold and so does my pain levels. I have a tendency to watch the barometric pressure. This if anything seems to be the factor here in Hawaii.

What I managed to stop years ago was the sweating from my whole being and especially my RSD arm. This maybe just a timing factor w/ my RSD arm, as my atrophied fingers, arms and frozen shoulder began to move as numerous blocks and a continuous epidural started to work on me. But, I found out the major sweating problems were hormonal. I'm on meds for this now. So, as suggested here, it maybe a good idea to have a test done to see if your hormones are out of whack. Many have had children...many may be on or have been on birth control, so many things can throw our ladies systems off.

Now....where's the Birdie? I think there maybe a Tiger or two in the house!

Good Luck to ALL in todays game ....Let's PLAY BALL.

I was ready to order some shawls when I realized, I won't be able to tolerate
the shawl rubbing across my arms.

I am SUPER sensitive and could be wearing 6 layers and still I feel an air conditioner turned on.

Even if clothing rubs it is painful. Lots of layers help, except when you need to take off fast.
Just like putting on socks - having them on hurts. Shoes only make it worse.

Thanks for the idea though. Imagine how excited I was to get a shawl. Still I may try one and keep my arms out.

Jose, I can relate to what you say except even at 100 degrees my pain doesn't get worse. The cold, like you said is the killer.
Is moving to Az the answer ?
I might even be able to afford to live if I was there !

I find it strange after all these years on the forum I have never seen discrepancies in having blocks as a first line of treatment.
Building on blocks was supposed to be the secret if there was any hope of remission.
There must be new studies or information out there that I haven't read.

Dana, You hit the nail on the head when you described the internal temp changes.
I don't think my actual temp changes though,
like someone mentioned.
Changes in barometric pressure cause flares.

I went through menopause at least 7 years ago; for me this is totally different. For some that may be the key.

My PCP has a sub-specialty in endocrinology so he checks hormone levels
frequently - even saliva levels of hormones.
Everyone had their physicals????
Make sure the doc checks hormone levels.

I have other things that are in no way related to RSD -- one just seems to know after a few years what is and what is not RSD.

Dana, we may just lasso your island and bring you out of paradise for awhile & a little closer to us, You'll save on the A.C. bill

Hope all have a good evening,
Hope

Tee hee. Okay, first...I've been hypothyroid for years and have taken meds for about 15 years and have my levels checked constantly for that. Second, I'm thinking of having something checked, but i dont' know what. I think the change to topamax may have done SOMETHING to me (and sorry to the men on the board) but last month, my first full month on it, I had an extremely light "monthly" where it was basically just spotting. This month is more normal so far...so perhaps I'm finally adjusting.

As for the birdies and tigers...I was wondering if anyone was going to "get" that out of the "code" flippnout and I were speaking. LOL! GREAT detective work and all the way from HAWAII! If only Mother Nature would LET US play ball, I'm sure we'd be much happier.

Hugs
LisaM

tonight the weather is supposed to be just as bad.//?? boo hoo.....but of course the tigers had cold weather for the series too.......

lisam, what part of michigan are you from? i am from downriver actually 15 minutes from the stadium.........have attended many a ballgame this year.....................
and the red wings? what is happening with them? shanny deserted us...........and stevie is gone..................been to two games so far, but not too interested in them yet.....after baseball.............................