I know temperature changes have been mentioned before,
but I'm talking something different.
Fall is here.
As usual the temps are in the 60's at night and 80's during the day.
Please don't hate me, because it doesn't matter.
My body knows it is fall and it is cold. The goosebumps continue are are so painful on my burning arms and legs which of course leads to exhaustion and need / desire to stay in bed.
Today at 86 degrees I had on a sleeveless top, a winter sweater and a raincoat and sat outside in the sun. The house is 75 degrees and I am freezing and hurt so much. But it is not cold. It is fall and my body knows it and is reacting to it like I live in New England.
Suddenly I begin sweating and take it all off, but by that time I have chills and the cold feelings start all over again. It is dominating my day and painful to dress and undress. I don't think there is a solution, and I do think it is a symptom of autonomic nervous system dysfunction.
What I'd like to know is AM I ALONE FEELING LIKE THIS
? And why do I have to have all these symptoms I can't prove & doctors are so ignorant about? (you don't need to answer that one )
Thanks, Hope

we have had much cooler temps here in michigan..........brrr just down right cold.............even saw some flurries today...............
but, with two of us stuck with the darn rsd, it is havoc in our house.....frank is always hot, but starting to get cold feelings in his arm, and i am always cold, with some hot flashes tossed in.................our thermostats never coincide with each other.............
the cold burning feelings just tend to stick around with all of us...........YOU ARE NOT ALONE.
big hugs to ya...............ps. thanks for the thoughts of teddy.........

YOU ARE NOT ALONE! You put into words exactly how I feel. Everytime the weather changes just a little... I know it well before it happens.

I used to LOVE winter. Not now.

I was going over a recent glove selection at the opening of a Kohl's store the other day looking for any warm soft gloves with out a tight wrist band. They are hard to find! I found a pair with soft part cashmere lining that had some thinsulate and were knit on the outside! $10 on sale! I bought 3 pair! They were perfect! I've been wearing gloves on and off every other hour it seems since mid-August.

I never know what to wear. A long sleeve T is not heavy enough - a full length sleeve sweater for all day at work and I'll be to hot at some point.

I know my actual body temperature goes up and down at least 4 degrees every few hours. It will drop as low as 97 and go up to 101 on really painful days. No wonder I get hot and cold all day!

Since sweaters are so hard to get on and off, a woman I know offered to crochet a couple "wraps" for me. One for summer and one for winter. The Summer one is made from cotton, the winter from some soft acrylic yarn she found. It is warmer. They are like extra wide scarves, and I can just throw them on or toss them off in a hurry. Another woman I know is making one for me but knitting it. It's going to be made from some special alpaca yarn I bought that is so soft and should be super warm. Since the knitted stitch she is using will be closer together than crochet stitched one, that will make it warmer too.

They are so nice, I was thinking, it would be easy to make them from fleece type fabric - it's just a long straight piece. As long as your arms from fingertip to fingertip, and as wide as from your neck to your wrist.

That is odd though, how your body knows it's almost November, so it's going to be cold, even though you are in a warm climate. Here, it's snowing outside! We have not had a frost yet, but it's snowing! It won't stick - at least I hope not, since it's 35 outside, and I don't think the ground is cold enough for the snow to stay frozen. brrrr.

I think I will go make some hot chocolate.

It is snowing here as well. I cannot turn the heat up because I have to conserve fuel. Still, I will break out in a sweat and feel super warm and then will be cold again. I have been through hot flashes and this is not quite the same.

If you do not have someone to make a shawl for you and cannot sew for yourself, you can find some ready made. I get all kinds of mail order magazines - Harriet Carter, Miles Kimball, Walter Drake, Carol Wright, Dr. Leonard's. I have seen shawls in all or some of those. Some even had pockets to keep your hands warm. I imagine that they also have internet sales. Try going online - you may find something suitable.

I found that when I am really achey a warm sheet from the dryer makes a nice cozey body wrap.

Do any of you men have trouble with sweating or chills?

Regards, Lil

Welp, Michigan is FREEZING! I hate Michigan. Hate it hate it hate it!!!! I with it would fall into one of our "great" lakes!

It was 35 when I got up this morning and isn't supposed to get above about 43 today. Thing is, some of the medication I take makes me sweat at night. BUT I'M FREEZING COLD! So what's REALLY bad about that, is I'm cold...and wet...and being cold and wet makes you COLDER, then when the alarm clock goes off, and you have to get OUT of bed, out from under the nice warm down comforter, into the freezing cold bedroom (cuz you have propane heat and your SO refuses to turn on the heat until tis' ABSOLUTELY necessary!) it's HORRIBLE. Brrrrrrr! So I threw on my robe (which is vry, very soft....has to be!), my fuzzy slippers and ran downstairs to stand in front of the woodburning stove which is nice and toasty warm.

Only, my body cannot handle TOO warm or TOO cold. In PT they realized I sense temperature changes so well, that even a SLIGHT one degree change makes a difference for me. So begins the act of "one step forward, or one step back....no, how about a HALF a step forward, two steps the the right, maybe a half to the left?" dance that I do to find the EXACT right position where my body feels comfortable.

Only to have Bailey, my loving little Chow Chow, realize I'm awake and come running down asking to go potty...and I have to move from my "spot" to let her out!


grrrr!!!!!!!!!!!!!!!!!!!!!!

Hugs
LisaM

I'm not a man, but I do have trouble with both

I understand mine is caused by one of the medications I take. I "think" it's the topamax. My sweating is mostly at night, or at "times" during the day, usually when in a shopping mall, grocery store, or similar place, where it's warm, but not awfully warm...just too warm for ME. And when sleeping, I sweat so badly, I soak my sheets. Then when I move, the cold air gets under the covers and chills me, freezing me like crazy!

At lest, that's what MY hot/cold is likr, and what it's caused from

Hugs
LisaM

Hi ,
I don't have RSD, but TOS and myofascial pain.
But the thread title caught my eye.
And the heat/cold/barometer changes affect those conditions too.

I'm sure you all have had your thyroid /hormones checked too?
that could be playing a part too.
{just curious about that}

I think the heat is WORSE than the cold, but the cold makes you tense, which is bad for the spasms.

Any rise in the heat makes me feel like my fingers are going to spontaneously start on FIRE. My hands are hot to the touch...when I touch people, THEY JUMP they are so hot. However, the cold BREEZES do hurt. And the cold AIR also - because if you think about it - very hot mixed with very cold makes a "tornado" - so very cold air touching my very hot hands causes pain - almost like - what the heck is that? Where if it's too long in the cold you lose your limbs??? DANG MED BRAIN!!! I know you all know what I mean.

It's any change, but if there is a heat source, such as yes...a lightbulb, a stove, even a hot plate of FOOD that I am trying to eat off of, or a bowl of soup, even trying to eat a taco (first time I had taco's was the other night...and I had to hold it with a napkin....too hot for me to hold now with my rsd hands!). Even the slight rise in heat will be way too much.

On the other hand, I don't like to take an icecube from a tray, grab a gallon of milk from the fridge, take the ice cream out of the freezer, etc. Any EXTREME is intolerable to me. Only in different ways. I can get CLOSER to the cold than I can to heat for some reason. I just "don't like" the cold...I can't TOLERATE the heat.

Is that odd? LOL!
Hugs
LisaM
pSST....***MEOW*** Here, Birdie, Birdie, Birdie!

However, cold makes me shiver, which tenses me up, which does send me into a flare. I get muscle spasms really bad...and because of that, shivering is no good. NO tensing at ALL is good. And sometimes you don't even realize you are tensing.