Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-28-2008, 08:26 PM #1
debbiehub debbiehub is offline
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OK- New symptom- My right cheek is twitching probably about 50 times a day (under the eye that occl feel like its getting sprayed with water. The twitching doesnt hurt, just annoying!

My PM doc (who was just written up as a best doc in NY) told me RSD does not go into the eyes or mouth! I know he is sooo wrong but how do you tell them that- I need some articles to show him- he is very open to learning so I don't think he would be offended.

Any thoughts

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Old 05-28-2008, 09:51 PM #2
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I don't have any articles... but I DO HAVE RSD IN MY EYES and MOUTH....

I can not eat or drink anything that is hot or ice cold.... I can't feel the hot...it's just shear pain... and Cold is torture... just like putting ice on any other part of my body..


I truly wish you the best.... I wish I still had the pictures and mini film of my face cramping and twitching... it cramps up and twitches in the weirdest looking ways...

My doctor told me that RSD can and does go anywhere in the body. If there are nerve ending in that part of the body... it can go there.



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Old 05-29-2008, 10:45 AM #3
Annie Poo Annie Poo is offline
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Default twitching & mouth pain

I have CRPS type II from venipuncture injury to arm which has spread to the right half of my body. Symptoms in the right half of my face & head periodically (usually during flare-ups) include burning pain on the right half of my tongue and/or lip. It's pretty freaky.

I've had problems periodically with twitching near my eye also.
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Old 05-29-2008, 09:47 PM #4
Iffynah Iffynah is offline
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go to **** that is where i get a lot of my info about rsd. i have only been diagnosed with rsd a short time luckily mine hasn't started to spread yet but i have a lot of the other stuff that comes with it the blurred vision (which i might have to talk to my work and tell them its not so safe for me to drive anymore, and its a workmans comp injury) the irratibility, dry eyes....
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