I just wanted to say one more thing, I live with RSD myself and I know what it is like. I searched all over and found that PA is basically the best state to seek treatment. There are many people that travel there to get better care. They have helped me alot. Another place is the Mayo clinic in Ohio. I go to the gym and lift weights and I also swim alot. Getting some form of exercise, even just long walks, I try and race walk but I just had my leg reconstructed. My leg is basically all metal from my knee up to my hip (knee replacements and rods in my femur. That is the cause of my RSD. Besides getting injections and taking neurontin; I also try to eat right. Eating vegetables and fruit is important. I also maintain my weight. Another medicine that is helpful is Lyrica. I do have to take pain meds once in awhile, but I try to stay away from that. I try to have a good outlook,and tell myself that I won't let it overcome me. There are people with all kinds of diseases that have it worse. You have children to wake up to everyday. Keep that in mind. I have my kids and a grandson. That definitely keeps me going. Keep your head up, you have too much to enjoy in life and look forward to.

treatment for RSD
 

I'm new to this site but stay away from Ampitriplyn, I used to be a paramedic but because of the RSD and all my knee operations, I can no longer do it, but I ran into so many people that have tried it and said it really knocks them out, plus it's addicting. Try Lyrica or Neurontin. Go into RSD, DR. Schwartzman, Phil, Pa. They are the best in the US. for treating this disease. People travel from all over. If your insurance pays for it, lidocaine infusions really help. There may be some other DR's that do them. There are many DR's that don't recognize the disease.

needless to say the Ampitriplyn didnt work for as nor did the Neurontin, I asked about infusions as I have had about 14 injections which were to say the least temporary, as this is a workers comp issue I'm sure they will not pay for any traveling much less experimental things since they wont even pay for the spinal cord stimulator. Thanks for the info though.

For those who suffer from CRPS
 

I am a fellow sufferer in WA State. I have found a lot of useful information and tons of information on rsdcanada.org and on line.
I cannot do not have a specific Doctor to recommend, but I see an incredible Neurologist who unfortunately is not taking new patients.

Please keep researching, there is so much important info available to us.

I know thi
 

I know this is late but there is now a Crps Specialist in Spokane Washington. Her name is Dr. Laura Edinger and is with Rockwood Neurology. I advise anyone in the eastern Washington northern Idaho or anyone else willing to travel to see her to do so. She is extremely dedicated and compassionate. She personally called me at 530pm on a Friday night and holiday it was a holiday weekend on top of that!

Welcome sarahleee. :Wave-Hello: