[dillypooh]

I was diagnosed with RSD about a year ago, and I am not sure if the diagnosis is correct. I have been battling with my foot for over 2 yrs now. First my podiatrist said I have Plantars Fashitis (SP)? and I know I have that. He gave me 3 shots in both feet and it really didnt do any good so he sent me to a neurologist who took test and said it was either RSD or Tarsal Tunnel.
Oh and possibly a stress fracture. Well he then sent me to an orthopedic surgeon and he finally said yes it is RSD and gave me steroids. He also gave me shots in the top of my foot and that didnt help. After that I went to pm and had 3 series of shots in my back that didnt help. Sorry to be long winded just want to explain what has happened to me.
Ok I would like to hear from the people , if you will, and tell me about the symptoms in your foot. This is what's going on with mine.
My second to will not touch the ground. It was mentioned that I have an uptake in that toe. Right above the toe u cannot touch it because it is too painful. The part that hurts all the time without touching it is the inside of my foot. Sometimes at night it twitches and the pain goes up in my legs and it is almost unbearable. My foot does swell anytime I am on it much. There is not discolor though. Most of the time it is cold to the touch but it feels like it is burning up. I so think it might be tarsal tunnel like the test suggested but I dont know. I am about to lose my mind. The only way to keep it out of pain is not to walk on it. When I do have to the pain is almost unbearable. Would someone please give me some insight to what they may think about this? Thanks so much for listening.

[debbiehub]

Originally Posted by dillypooh

I was diagnosed with RSD about a year ago, and I am not sure if the diagnosis is correct. I have been battling with my foot for over 2 yrs now. First my podiatrist said I have Plantars Fashitis (SP)? and I know I have that. He gave me 3 shots in both feet and it really didnt do any good so he sent me to a neurologist who took test and said it was either RSD or Tarsal Tunnel.
Oh and possibly a stress fracture. Well he then sent me to an orthopedic surgeon and he finally said yes it is RSD and gave me steroids. He also gave me shots in the top of my foot and that didnt help. After that I went to pm and had 3 series of shots in my back that didnt help. Sorry to be long winded just want to explain what has happened to me.
Ok I would like to hear from the people , if you will, and tell me about the symptoms in your foot. This is what's going on with mine.
My second to will not touch the ground. It was mentioned that I have an uptake in that toe. Right above the toe u cannot touch it because it is too painful. The part that hurts all the time without touching it is the inside of my foot. Sometimes at night it twitches and the pain goes up in my legs and it is almost unbearable. My foot does swell anytime I am on it much. There is not discolor though. Most of the time it is cold to the touch but it feels like it is burning up. I so think it might be tarsal tunnel like the test suggested but I dont know. I am about to lose my mind. The only way to keep it out of pain is not to walk on it. When I do have to the pain is almost unbearable. Would someone please give me some insight to what they may think about this? Thanks so much for listening.

A lot of what you mentioned could be RSD. MY rsd was diagnosed thru a triple phase bone scan. You may want to see if you can get that test. I hate to say it but doctors are not well educated in this area. You will get many different opinions from doctors...try and get the test done but even if it comes back negative you many still have it, but if it comes back positive you will know

Hope that is helpful

I know its painful but try and walk on it! or if you have access to a pool do some exercsises

GOOD LUCK and keep us posted

Deb

[ali12]

First of all welcome to the forum - If I can help you in any way please just let me know!!

I'm so sorry to hear that you too may be suffering from RSD. Some of the symptoms you are experiencing could be RSD - the main symptoms of RSD are:

1. Burning, Shooting, Tingling, Cramping pains (although the main sort of pain is burning)
2. Allodynia (this is where the slightest touch causes extreme pain)
3. Swelling
4. Colour changes (the affected limb may go blue, red, purple etc etc)
5. Temperature changes (the affected limb may be hotter or colder than the other limb)
5. Muscle spasms or tremors
6. Hair and nail changes

Unfortunately there is no test to confirm the diagnosis of RSD or rule out the diagnosis - I was diagnosed based on symptoms, although I did have MRI scans, X-Rays, Blood Tests etc.

I was diagnosed with RSD by a Pain Management Doctor although an Orthopaedic Doctor told me that he suspected that I had RSD.

If you suspect that you have RSD please DON'T use ice!!

If you need any more information please don't hesitate to ask
Keep us updated when you can

Best wishes
Alison

[Debby]

If this has been going on for 2 yrs then some of the symptoms that
Ali posted you may have already had & not have anymroe. Especially after the LSB's it sounds like you may have had??? Or were they epidurals?? You need to know what type you had in your back.

I was told I had neuroma's & they caused the burning pain I had. I let the posiatrist take 2 out of my left foot. BIG BIG BIG mistake as the pain intensified. He told me that might happen but not that it would go into RSD nor that it might be RSD from the get go. I have this pain in both feet since 2003. They will burn even if cold. Turn bright red around the bottoms & up into my toes. Even the nail bed under the nails turns bight red. They also hurt like crazy walking on them. Like I walk on bruises, altho some that could be Fibromyalgia. Before RSD I was DX'ed with Fibro in 1989 & they would feel like bruises to walk on at times. Anyway I do get shooting pains & they cramp, the toes. I get sharp pains even when sitting anywhere in my feet. Plus they also feel like they are dead weight, like when your jaw is numb from novacaine. They feel numb like tthat but at the same time HURT &/or BURN also. I had to give up work due to sleeping all the time & dealing with the pain. I am high doses of Morphine & other meds too & the pain will still come thru it. This year has been a bad year for me so far as pain is concerned. Seems it was better controlled last year than this year. But I am on the same meds that I was on back in 2004. My ankles also ache alot. I have had some symptoms in my hands & have SGB's for them. I am going to have to go there again I think too. LSB"s don't help all that much anymore. Altho they were not helpful at the beginning either.

Back to not having some of the symptoms anymore, some of the treatments especially LSB's or SGB's will put some of the symptoms to rest while not helping others at all. And yes I still get burning pain. I don't get swelling all that much anymore. For example: I went from size 10 Med width to size 11 Wide width shoes. Now I don't need wide width anymore nor size 11 in say hmmmm sandels.

I only see a pain mangement doctor now.
DebbyV