NeuroTalk Support Groups - Spread of RSD...

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Spread of RSD... (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/48488-spread-rsd.html)

Hey Desi,
Sorry it took so long for me to get back to you, I just all got busy again. I do have Rsd in my hands and arms,but I don't know for sure if it is in my feet. The reason i don't go to another doc is becuz When work comp and i settled out of court Dr. Panozzo is my authoriized doc and what he says goes. He is the only one that work comp will pay for and i can't afford to go to another one because i can't get health insurance. So I have to abide by this doc. He is a really good doc I just don't want to go in and hear that that is what I have. I guess I am just not ready to accept that there is a chance for it to be in my feet. Rsd has taken to much away from me now. The sad thing is now my attorney and I have to open to review because work comp is not holding up to there end of the deal so we have to go after them again. I have to pay for my meds out of pocket and turn the receipts into my attorney to get reimbursed which I am not cuz of work comp. By the time I pay for all my meds I need for a month it costs over $500 for ONE month. It just sucks.I just don't want to deal with hearing it from the doc again. It is very hard.I am trying really hard to keep my chin up but I have a lot of days that I just can't and I just don't know if I am ready to hear from my doc that the rsd has spread to my feet. That is why I am scared.

Sincerely,
Screwballpookie

Desi, I broke my toe several weeks ago- it took three days for the RSD to find the injured toe and then it attacked. The pain was so severe Ithought possibly a bone piece had broken off and was irritating it so I went to a walk in clinic emergency clinic- the doctor too said he was familar with rsd- the ----- thought I wanted oxycontin-treated me awfully and then said RSD can not spread to a single toe. Well since I have full body rsd and my toe which was broken started spasming and shooting out to the right once the rsd found it. So now it is red hot with alloydina like orignal rsd injury. Its been 8 weeks and I still can not wear a shoe. So we all know RSD spreads- there is no excuse any more for these ignorant doctors. Ive really had it with them.
Hope you get better, CZ The xray just showed the break, no bone fragments.

Quote:

Originally Posted by Desi (Post 307079)

Hi friends!
My feet swelled up, my doctor said it's from the RSD Ok, lastnight it swelled up(Both feet, the right being the worst) I had to go to the ER due to the pain, burning. The ER doc. comes in. They do the routine.. take blood, ex-ray of my chest. I asked him if he ever heard, knew of RSD He said yes, I have. Ok, so I said you know, from this starting(RSD) in my wrist after carpal tunnal surgery up to my arm, then my shoulder, now down to my feet, one leg is awful!! Listen to what he said; He said, oh no, it's impossiable for RSD to travel anywhere, except to the site where you first got it!! Guys, this RSD is spreading now really fast and I just hate this. Also, my husband is in the hospital for a foot infection, he stepped on something in my son's pool apt. complex And him being a diabetic, the foot is pretty bad. He had surgery a couple of days ago and they will still not release him. Well, that's what has been going on with me so far. I do hope all is well with everyone here!!Please say some prayers for Bill and me. Thank you so much! Love to all, ~Desi

Hey there, CZ!!
Oh wow, I am so sorry your toe broke!! OUCH!! Get better fast! Yup, a lot of these doc's THINK they know all about RSD.. NOT! LOL thanks for the well wishes!~Love, Desi :)