Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-30-2006, 10:58 AM #11
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Lisa -

Please check out the following article:

Author: Maleki A, LeBel AA, Bennett GJ, Schwartzman RJ.
Title: Patterns of spread in complex regional pain syndrome, type I (reflex sympathetic dystrophy)
Source: Pain 88. 2000.

Youn can link to it directly under the RSDSA Medical Articles Archive under the heading of "Treatment," at http://www.rsds.org/2/library/articl...ive/index.html

Mike

Mike, that's absolutely PERFECT....thank you SO MUCH. That's a wonderful source of info!

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Old 10-30-2006, 12:11 PM #12
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Lisa -

Anytime. The RSDA library page is a particularly good source of reference on many questions dealing with this illness. Head and shoulders above the rest, to be specific.

Mike
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Old 10-30-2006, 12:14 PM #13
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Originally Posted by fmichael View Post
Lisa -

Anytime. The RSDA library page is a particularly good source of reference on many questions dealing with this illness. Head and shoulders above the rest, to be specific.

Mike
Yes, it is Mike...I'm not very good at reading medical jargon, and some of it is written in medical terms, making it quite difficult to deciphre. But if I read it REALLY SLOW, I can make sense of it (or I can ask you guys! LOL!). Right now I'm reading the one about disability, cuz ppl are pushing me in that direction, and I don't know if I'm up for the fight. Sigh....

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Old 11-01-2006, 04:45 PM #14
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Lisa,
I know some people here have had a bad time of getting disability, in fact an incredibly hard time. But I am one who had no problem at all. I applied & I was approved in about 6 months time.

And as far as spread went for me.
When it started in my feet, it started in both feet at the same exact time. But the left foot hurt worse than the right. Talk about a 'mirror aefect'.

Then over time, about a year & half later or so, my hands started to burn & the palms turn bright red. Both at the same time. Altho again the left hurt more than the right.

LSB's did nothing to halt RSD in my feet. But the SGB's did halt & stop the burn & redness in my hands for the time being anyway. Go figure. I have been having a little burn come back to bother so I may end up with nerve blocks for them again.

But I did have back surgery between the neve blocks in my vs the ones for my hands. And no I did not have spread from back surgery at all. The burn in my hands did start before I had back surgery I just had to put off the nerve blocks for my hands until I was healed from back surgery about 8 weeks or so.

Anyway that has been my spread.

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Old 11-01-2006, 05:12 PM #15
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Originally Posted by LisaM View Post
Yes, it is Mike...I'm not very good at reading medical jargon, and some of it is written in medical terms, making it quite difficult to deciphre. But if I read it REALLY SLOW, I can make sense of it (or I can ask you guys! LOL!). Right now I'm reading the one about disability, cuz ppl are pushing me in that direction, and I don't know if I'm up for the fight. Sigh....

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LisaM
all i can suggest from my experiemce with disability, is to start off with a lawyer. i filed in june of '04 (initially getting hurt dec '03). and i was denied like 3 times, till i went to court last week and won. although for me i think it was hard because i'm only 23, and was only 20 when i filed. being so young put a definately challenge on it for me. but finally winning the battle definately made it worth the fight. good luck w/whatever u decide to do!
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Old 11-01-2006, 08:16 PM #16
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Andrea,
Congratulations!!! The SS Admin do frown on people your age applying for SSD benefits. Like if you had the choice you would even apply???? DUH!!! But the worst part is, there are people your age & mine who apply with bogus disabilities. They are why legitimate claims get denied. Same thing with insurance, especially personal liability claims.

Well again Congrats!!! The next person I want to see winning their claim is Allen. He too has had a difficult time getting his claim approved. Amazes me how one person can apply with RSD & get approved immediately, then the next one has to go thru denial after denial. With older claimants it has to be the way the doctors word their statements. My claim went right thru. Yes I was on SSD back in the 90's, but that was for an entirely different medical condition & yes I had to go thru one denial back then. Sure sucks to have to be on SSD twice in one lifetime doesn't it??? When I got well from that darn car wreck in '91, I never ever would have guessed approximate 7 years later I would be back on SSD. I had a headache for a 6 years straight. A headache so bad that approx one to two times a week I would have to give myself a IM injection of Toradol in my thigh. It was really a bad headache & neither narcotics/opiates would even come close to easing it off. Toradol did because it eased off the swelling in my face, head & neck. Anyway here I am off & rambling again *LOL* ENOUGH!!

Congrats again!

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Old 11-01-2006, 09:25 PM #17
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Debby
Your spread sounds exactly like mine! I never thought a block could help at this point in the game- I am so upset with this spread- Where is the shot when they give you a SGB?

Thanks for any info
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